Westchester Independent Living Center, Inc.

Scoliosis Awareness: FAQs & Independent Living

Scoliosis Awareness: FAQs & Independent Living

In June, we raise awareness about Scoliosis, a condition that impacts the spine, causing a lateral curvature of the backbone. This condition can affect individuals across all age groups, from infants to adults. While some cases are mild, others can be severe, leading to restricted movement and discomfort.

Westchester Independent Living Center (WILC) recognizes the significance of raising awareness about scoliosis and its impact on independent living. Scoliosis can pose unique challenges for individuals striving for autonomy, highlighting the importance of early detection and intervention to mitigate its effects on mobility and quality of life.

What is Scoliosis?

Scoliosis is a condition characterized by a sideways curvature of the spine, typically measured at angles exceeding 10 degrees on an X-ray. This deviation from the spine’s normal alignment can result from various factors, leading to different types of scoliosis. These include:

  • idiopathic scoliosis, the most common form, which develops from genetic factors and hormonal dysregulation
  • congenital scoliosis, stemming from abnormal spine development before birth
  • neuromuscular scoliosis associated with conditions like cerebral palsy or muscular dystrophy
  • degenerative scoliosis linked to age-related changes in the spine
  • rotoscoliosis, which involves twisting of the spine alongside curvature.

Understanding these distinctions is crucial for effective diagnosis and treatment planning.

 

What Symptoms are Associated with Scoliosis?

Symptoms of scoliosis can include uneven shoulders and waist, as well as prominence on one side of the back, and the rib cage often jutting forward. These signs not only affect the physical appearance but also can lead to a multitude of challenges, such as breathing difficulties, limitations in bending and lifting objects, decreased mobility, and an increased likelihood to conditions like arthritis. As a result, the daily routine may be considerably burdensome for persons with scoliosis.

How Does One Manage or Treat Scoliosis?

It is possible for those with scoliosis to live independently and manage day-to-day challenges. Doctors recommend various methods to impede curve progression—from common, noninvasive approaches like wearing a brace, to more severe cases and treatments such as surgical procedures (such as spinal fusions, expanding rods, and vertebral body tethering.

Additionally, self-empowered strategies such as maintaining good posture, engaging in regular exercise to strengthen supportive muscles, and managing pain through heat or cold packs are important ways to manage an enhance day-to-day life. As with any condition that poses a challenge to independence, one’s immediate home environment is also key to navigating scoliosis: a supportive mattress and pillow, or an assistive device like a reach extender, can be very helpful in empowering an independent lifestyle.

 

 

At WILC, we encourage self-advocacy throughout one’s journey with health and independence. With timely treatment, proper resources and support, living independently with scoliosis is an achievable goal. As we raise awareness about scoliosis this June, we hope to build a more educated community that recognizes and celebrates individuals facing various disabilities, including scoliosis, making strides to lead fulfilling lives.

 

If you are seeking guidance for accessing the resources and opportunities you need in order to live independently, please reach out today to WILC at (914) 682-3926 or PILS at (845) 228-7457.

Celebrating Resilience on World MS Day: Q&A with Cynde Stratton

May 30th is World Multiple Sclerosis Day. On World MS Day 2024, we are honored to share insights from on MS from Cynde Stratton, a dedicated staff member living with multiple sclerosis. As an Independent Living Advocate with PILS, Cynde offers her own experiences with MS—from the numerous challenges to the triumphs of maintaining independence while living with a chronic condition. Her experiences capture the resilience and commitment to empowerment that WILC strives to embody every day.

 

  1. What kind of challenges do you face in maintaining independence with your MS?

“There are so many things that challenge my focus and emotional fortitude to sustain a consistent effort to maintain my independence. The unpredictability of MS presents the most challenging obstacle. Symptoms and their severity change with such frequency and intensity that it is easy to doubt my ability to meet challenges. One of the hardest aspects is not being able to trust my body.” Cynde expresses that MS’s unpredictability can make it difficult to keep social plans as well as appointments for her job and health.

Another challenge, Cynde shares, is that “many of my symptoms are invisible, so others have doubted my level of disability. This judgment has, at times, interrupted the consistency of my efforts to maintain my independence.” This judgment, along with the progressive nature of the condition, can fluctuate her levels of confidence, self-efficacy, and self-esteem.

 

2. What strategies have you found helpful in overcoming obstacles related to MS and maintaining your independence?

“Acceptance and flexibility are probably my most effective strategies.” She shares, “I practice good mental health and see a professional therapist. I stay socially and spiritually engaged and keep a support team of people that I trust.” On a practical and physical level, Cynde is observant of any permanent changes in her ability, creating and utilizing compensatory strategies as needed—this includes resources like physical, occupational, and speech therapy. “I develop relationships with my therapists so they can track the progression of my disease and assist me with developing compensatory strategies.” Because MS is a progressive disease that dictates one’s capabilities at any given time, Cynde emphasizes the importance of communication–“developing the skill and confidence to communicate exactly what I am experiencing and what I need to help others understand where and why I am having difficulties.”

 

3. How has your experience with MS shaped your approach to advocating for independence and empowerment within the disability community?

“My MS experience reminds me that each person and their disability experience is different. I am much better at meeting people where they are and advancing at a comfortable pace for them.” Having adapted the necessary practical and communicative strategies through her own journey with MS, Cynde approaches her advocacy work with PILS with much sensitivity and understanding. “My active listening skills and empathy continue to evolve,” she shares. “I want to be an example to my clients that you can live well despite having a disability. I make a consistent effort to acknowledge challenges, celebrate successes, and empower others.

 

4. What advice would you offer to others living with MS who are striving to maintain independence and pursue their goals?

Cynde offers valuable advice to others living with MS who are striving to maintain independence and pursue their goals. It is important of course, Cynde says, to “maintain overall good health. Eat well, get plenty of sleep, hydrate, keep stress to a minimum, and stay as active as you can.” Cynde emphasizes the equal importance of taking care of one’s mental and emotional outlook. “Keep a positive attitude and believe that you can have a productive, satisfying life.” She further affirms the importance of a positive attitude, advising others living with MS to “practice gratitude daily” and “surround yourself with people that share your optimism and encourage you.” Her final piece of advice—”Never give up!”

 

 

WILC would like to thank Cynde Stratton for sharing her experiences and invaluable advice. Her continued dedication—not only to herself, but to helping others on their independent living journeys as well—is a testament to the strength and resilience of individuals living with MS. On this World MS Day, we celebrate her journey and the journeys of countless others who face similar challenges. At WILC, we remain committed to supporting and empowering individuals with disabilities, helping them to lead self-directed and fulfilling lives.

 

 

 

The Heartbeat of WILC: Our Administrative Team

At Westchester Independent Living Center, we are immensely grateful for the dedication and hard work of our administrative professionals. Behind the scenes, these individuals play a vital role in ensuring the smooth operation of our organization and the fulfillment of our mission to empower individuals with disabilities to lead self-directed lives.

Our administrative professionals are the backbone of WILC, handling essential tasks that keep our programs and services running seamlessly. From managing schedules and coordinating appointments to maintaining records and facilitating communication, their contributions are invaluable to the success of our organization.

It is the commitment and expertise of our administrative team that fuels our mission of advocacy, training, and referral to resources that promote independent living. Their attention to detail, organizational skills, and dedication to service are central to our ability to serve individuals with disabilities and their families effectively.

To our administrative professionals at WILC: thank you for all that you do. We are proud to have you as part of our team!

Pictured:
Top Left: Michael Colotti (L) and Peter Ortiz (R)
Top Middle: Veronica Brockett
Top Right: Greg Geary
Bottom Left: Dawn Rickert-Velez, Desiree Marrero, and Jofran Hunter (Left to Right)
Bottom Right: Meaghan Moldonado

Supporting Our Veterans: The Veteran Direct Care Program at WILC

According to the U.S. Department of Veterans Affairs, over 5 million veterans in the United States are living with a disability, with many facing challenges related to independent living. With such a substantial number of veterans grappling with disabilities, there is a clear and pressing need for support systems to address their challenges. Ensuring access to resources and programs is imperative in empowering veterans to maintain their independence and quality of life, despite their disabilities.

Westchester Independent Living Center (WILC) is committed to serving our veteran population with the utmost care and support. Our Veteran Direct Care program aims to address the unique needs of veterans, particularly those in underserved areas.

The Vision Behind the Veteran Direct Care Program

WILC’s Veteran Direct Care program was conceived two years ago in collaboration with the Veterans’ Affairs (VA) and No Wrong Door, which is a collaborative effort of the U.S. Administration for Community Living, the Centers for Medicare & Medicaid Services, and the Veterans Health Administration. The Veteran Direct Care program was born out of the need to assist veterans, especially those in more rural areas within the Lower Hudson Valley in accessing vital services such as personal care aids. The ultimate goal of the VDC program is to enable veterans to remain in their homes with the necessary support, rather than resorting to nursing home care. By empowering veterans to become employers of their personal care aids, we uphold their independence and honor their service to our nation.

 

Program Components and Services

The program offers outreach, referral, and linkage services tailored to the unique needs of each veteran. Anyone over the age of 18 with a military service background is eligible for assistance. Upon receiving referrals from the local VA liaison, WILC steps in to assess the veteran’s needs and coordinate necessary services. Acting as a liaison between the veteran and the VA, we ensure seamless access to essential resources and support.

 

More Information About VDC

While the program is non-medical, it caters to individuals with medically significant conditions who require at-home care. This opportunity to remain living in one’s home is an option that can overall improve, and in many cases extend, the veteran’s life. The autonomy this provides is deeply valuable to the vet and their family, who are grateful to see their loved one properly cared for from the familiarity and comfort of the home. The program also grants the flexibility to hire family members as caretakers, which further fosters a sense of familiarity and warmth in their caregiving environment.

All funding for the Veteran Direct Care program comes directly from the VA. This financial support enables us to provide comprehensive services to our veteran community, ensuring they receive the care and assistance they deserve.

 

Importance of Supporting Veterans

Nursing homes are unfortunately at times are understaffed, and provide generalized care. At WILC, we recognize the sacrifices made by our veterans and their invaluable contributions to our society, and so we advocate for services that are individualized to the veteran’s specific needs whenever possible. Extending support and services through programs like Veteran Direct Care is a way of honoring our veteran’s dedication and commitment. Our aim is to keep veterans out of nursing homes and maintain their independence, allowing them to live with dignity and autonomy.

 

Getting Started

Are you or someone you know interested in utilizing in the VDC program? Interested participants can initiate the referral process through their local VA office. After connecting and getting the process started with your local VA, our team at WILC is dedicated to guiding veterans forward to ensure they receive the support and assistance they need to thrive in their homes.

 

At WILC, we consider it an honor to support and empower our veteran population. Through programs like Veteran Direct Care, we strive to uphold their independence, honor their service, and provide the assistance they need to live fulfilling lives. As we continue to serve our veterans with compassion, we invite all interested participants to reach out and discover the valuable resources and support available through this program. Contact your local VA today to get started.

Understanding Traumatic Brain Injuries: TBI Awareness Month

Traumatic Brain Injuries (TBIs) present unique challenges to individuals striving for independent living. At Westchester Independent Living Center (WILC), we’re dedicated to shedding light on these challenges and providing valuable support and resources, both to people diagnosed with TBIs and their loved ones. In honor of Traumatic Brain Injury Awareness Month, we are sharing information on common causes and types of TBIs, challenges faced by individuals with TBIs, and some guidance for those navigating life after a TBI.

 

What is a TBI? Understanding Traumatic Brain Injuries

A traumatic brain injury (TBI) is a disruption of normal brain function resulting from a blow, jolt, or penetrating injury to the head. TBIs can range from mild, where there may be a brief change in mental status or consciousness, to severe, where an extended period of unconsciousness or amnesia may occur. These injuries can lead to a variety of physical, cognitive, emotional, and behavioral changes, impacting an individual’s ability to perform daily activities and engage in social interactions. The causes of TBIs are diverse and can include accidents, falls, sports injuries, assaults, and motor vehicle collisions. Management and recovery from a traumatic brain injury often require a multidisciplinary approach involving medical professionals, rehabilitation specialists, and—just as importantly—community and peer support networks.

 

How TBI Poses Challenges in Independent Living

TBIs can be thought of as “invisible” disabilities, as individuals with TBIs often face challenges that may not be immediately visible to those around them. Lack of situational and self-awareness can be a significant barrier to one’s ability to navigate daily life independently. As an individual with a TBI may not exhibit physical deficits, this can lead to interpersonal and professional challenges when others are not aware of their disability. This lack of recognition can be challenging for families, as the person may appear fine but struggles with processing information, leading to difficulties in daily activities.

 

Support for TBI at WILC

WILC is committed to providing comprehensive support for individuals with TBIs. Our collaboration with other organizations and professionals includes participation in the NYSDH Medicaid TBI Waiver Program. This program offers at-home services through Medicaid, aiming to divert individuals from nursing homes and provide the necessary support for independent living. In addition, WILC offers specific programs such as TBI support groups, connections to legal resources, assistance with employment and income, and various other resources tailored to individual needs. Being part of a support group is an especially important resource for individuals with traumatic brain injuries as it offers a sense of understanding, emotional support, and a platform to share coping strategies. The mutual exchange of experiences and social connections within the group contributes to a holistic approach to recovery, empowering individuals and their families on the path to independence.

 

Guidance for Individuals and Families

This TBI Awareness Month, we’d like to strongly emphasize that injuries can happen to anyone, at any time, at any age, and even as a result of minor falls and accidents. We encourage individuals and their families to be vigilant about even seemingly minor accidents, which may result in unnoticed TBIs. Seeking timely medical attention, self-advocating to discuss concerns seriously with healthcare providers, and actively following through with referrals can make a significant difference in the recovery and adjustment process.

 

Creating an Inclusive Environment

Raising awareness about TBIs is fundamental for creating a more inclusive community. Early detection is key, and the broader community can contribute by recognizing the signs of minor accidents and encouraging self-advocacy. By fostering a culture of understanding and support, we can ensure that individuals with TBIs receive the care, compassion, and opportunities for independent living they rightfully deserve.

At WILC, our mission is to empower individuals with disabilities, including those with traumatic brain injuries, to lead self-directed lives. By understanding the causes, challenges, and collaborative efforts available, we can collectively create a more inclusive and supportive environment for those navigating life after a traumatic brain injury. Together, we can make strides towards a society that recognizes and accommodates the diverse needs of individuals on their journey to independence.

If you have questions about the information discussed in this post, contact WILC at (914) 682-3926 or PILS at (845) 228-7457.

What You Need to Know About Winter Weather Preparedness

As the chill of winter settles in, it is crucial to ensure everyone is prepared for the challenges that come with colder weather. Winter weather brings a range of obstacles that can disrupt our daily lives and even pose serious dangers. It is important that individuals with disabilities are aware of the emergencies that come with cold conditions, and how to be prepared.

The team at Westchester Independent Living Center has put together important resources and tips for being prepared for winter weather.

Winter Weather Concerns

Freezing temperatures and winter precipitation can be an inconvenient challenge, or at worst pose serious dangers. The biggest winter concerns include:

  • Cold exposure/hypothermia
  • Home heating
  • Driving casualties in snow
  • Power Outages, and resulting spoilage of food and medications
  • Medical device failure when there is no power
  • Floods

Making a Preparedness Plan

WILC ADA Coordinator Michae Hellmann’s 3 tips for Emergency Preparedness, especially for those who live with disabilities, are:

  1. Do It Now – The key to preparedness is to get started today! Instead of putting it off, decide to make your plan and prepare your kit today.
  2. Make a Plan – We encourage you to visit our Emergency Preparedness page for a detailed guide on making an emergency plan. Having a list of contacts, specific medical care instructions, and local resources will ensure you are prepared for cold weather emergencies.
  3. Prepare a Kit – A supply of food, everyday items, and medical needs should be ready in case of an emergency. Your kit should be tailored to your individual needs.

Cold Weather Benefits

The Home Energy Assistance Program (HEAP) is a benefit can help you cover the cost of heating your home if you are in a heat or heat-related emergency. HEAP may utilized for fuel, utility costs, and heating equipment replacement and repairs. Eligible individuals can apply for HEAP once per season.

The enrollment period for HEAP is open now. To determine your eligibility and apply for this benefit, contact your county’s Department of Social Services:

Putnam Department of Social Services: (845) 808-1500 ext. 1
Westchester Department of Social Services: (914) 995-3333

Or connect directly with WILC for more information on eligibility and for support with your application!

Emergency Shelters in Westchester & Putnam

A complete emergency preparedness plan includes information about facilities that are available to you when it is not safe or possible to be inside your own home. WILC has compiled a list of emergency shelters and warming centers:

Putnam County
648 N Main Street, Brewster
845-279-6146

This emergency shelter is a partnership of Brewster Cares with St. Lawrence O’Toole and Trinity Lutheran Church.

Their location in Brewster provides shelter to Putnam County’s unhoused population from December to May. The staff and network of volunteers help to provide hot meals, a safe place to sleep, a place to bathe and launder clothes, and a communal atmosphere to those who do not have shelter for the winter. They work with Social Services to find permanent housing solutions and provide services for guests, as well as help them apply for jobs and connect with local employers. There is also a warm area here for the unhoused population during daytime hours.

Westchester County

Peekskill Area
Jan Peek Shelter (Co-ed Facility)
200 North Water St.
Peekskill, NY
(914) 736-2636

New Rochelle Area
Oasis Shelter (Co-ed Facility)
19 Washington Ave
New Rochelle, NY
(914) 633-0101

Mount Vernon Area
Oasis Women’s Annex  (Female Only)
22 East 1st St.
Mount Vernon, NY
(914) 840-9539

Yonkers Area
YWCA of Yonkers (Male Only)
10 St. Casimir Ave
Yonkers, NY
(914) 963-0640

YWCA of Yonkers
87 S. Broadway (Female Only)
Yonkers, NY
(914) 963-0640

Manor House (Male Only)
101 N. Broadway
Yonkers, NY
(914) 476-4864

White Plains Area
Samaritan House (Female Only)
33 Church St.
White Plains, NY
(914) 948-3075

Open Arms Shelter (Male Only)
86 East Post Rd.
White Plains, NY
(914) 948-5044

Westchester Independent Living Center hopes these resources empower individuals with disabilities to face the season with confidence. If you have questions about cold weather preparedness or the resources discussed in this post, contact WILC at (914) 682-3926 or PILS at (845) 228-7457.

Top Five Tips for Managing Stress During the Holiday Season

The holiday season is often touted as a time of joy, togetherness, and celebration. However, for many, it can also be a source of stress and overwhelm. Balancing work commitments, family obligations, and social events can leave us feeling drained and anxious. The good news is that with a mindful approach and some practical strategies, you can navigate the festive frenzy and truly enjoy the magic of the season.

The team at Westchester Independent Living Center would like to share their top tips for managing stress while navigating the holiday season.

  1. Prioritize Self-Care: Amid the chaos of holiday preparations, it’s crucial to prioritize self-care. Taking care of your physical and mental well-being is the foundation for managing stress. Make sure to get enough sleep, eat nutritious meals, and engage in activities that bring you joy and relaxation. Whether it’s a brisk walk in nature, a soothing bath, or a few moments of meditation, carving out time for yourself will rejuvenate your mind and body.
  2. Set Realistic Expectations: One of the leading causes of holiday stress is the pressure to create a perfect celebration. Manage expectations by setting realistic goals for yourself. Understand that not everything needs to be flawless, and it’s okay to ask for help. Delegate tasks and share responsibilities with family members or friends. Remember, the most memorable moments often come from the genuine connections and shared experiences, not the perfection of every detail.
  3. Set Boundaries: The holiday season brings a flurry of invitations and commitments. While it’s tempting to say yes to every social gathering, it’s crucial to recognize your limits. Learn to say no when you feel overwhelmed or need some downtime. Quality is often more important than quantity when it comes to socializing. Choose events that align with your priorities and bring you genuine joy.
  4. Embrace Imperfection: Perfectionism can be a significant source of stress, especially during the holidays. Instead of striving for flawless celebrations, embrace imperfections and find beauty in the uniqueness of each moment. Remember that people are more likely to remember the warmth and love shared during the holidays than the immaculate details of the decorations or the menu.
  5. Stay Active: Regular physical activity is a powerful stress reliever. Even during the busiest times, prioritize exercise to boost your mood and energy levels. Whether it’s a quick workout, a yoga session, or a dance class, staying active will help release tension and improve your overall well-being.

Managing stress during the holiday season is about finding a balance between festive obligations and personal well-being. By prioritizing self-care, setting realistic expectations, and embracing imperfection, you can create a holiday season filled with joy, connection, and meaningful moments.

To learn about mental health support services and webinars offered by Westchester Independent Living Center and Putnam Independent Living Services, visit www.wilc.org or www.PutnamILS.org.

Empowering Lives: Preventing Type 2 Diabetes and Enhancing Disability Awareness

As we observe Disability Awareness Month, it is crucial to shed light on a health condition that affects millions worldwide and is linked to disabilities —Type 2 diabetes. This month serves as a reminder of the importance of understanding and preventing this condition that not only impacts physical health but can also lead to various disabilities if left unchecked.

The team at Westchester Independent Living Center (WILC) would like to share information on the importance of preventing type 2 diabetes and the risk factors people should be aware of.

Preventing Type 2 Diabetes:

Type 2 diabetes is a serious health condition that, if left untreated, can result in severe complications such as heart attack, stroke, blindness, kidney failure, and even the loss of toes, feet, or legs. The good news is that it is often preventable, and one of the most effective ways to do so is by addressing prediabetes.

If you’ve been diagnosed with prediabetes, it’s a critical signal that your body is on the verge of developing Type 2 diabetes. The window of opportunity to make positive lifestyle changes is narrow, but it’s never too late to take action.

Risk Factors:

Understanding the risk factors associated with Type 2 diabetes is the first step toward prevention. If you find yourself in any of the following categories, it’s essential to be proactive about your health:

Overweight: Excess weight, especially around the abdomen, increases the risk of developing diabetes.

Age: Individuals aged 45 and older are more susceptible to Type 2 diabetes.

Family History: If your parent or sibling has Type 2 diabetes, your risk is higher.

Physical Inactivity: Leading a sedentary lifestyle, with less than three sessions of physical activity per week, contributes to the risk.

Previous Gestational Diabetes: Women who had diabetes during pregnancy (gestational diabetes) face an increased risk.

High Birth Weight: Giving birth to a baby weighing more than 9 pounds can be a risk factor.

Taking Control of Your Health:

Healthy Eating: Adopting a balanced and nutritious diet is crucial. Focus on whole foods, fruits, vegetables, lean proteins, and whole grains while limiting processed foods and sugars.

Regular Exercise: Engage in physical activity for at least 150 minutes per week. This could include walking, jogging, swimming, or any other form of exercise you enjoy.

Weight Management: Achieving and maintaining a healthy weight is key. Even small weight loss can significantly reduce the risk of developing diabetes.

Regular Check-ups: Schedule regular check-ups with your healthcare provider to monitor your blood sugar levels and discuss any concerns or changes in your health.

Education and Support: Learn more about diabetes prevention and management. Join support groups or educational programs to stay informed and motivated.

If you have prediabetes, join WILC’s CDC-recognized lifestyle change program. It can help you lose weight, become more active, and prevent or delay type 2 diabetes. Currently being offered through Zoom. If you or someone you know is interested in participating in the DPP Program please contact Aimee Parks at 845-228-7457 ext. 1106 or by email aparks@wilc.org.

Rapid Transition Housing Program

High-need Medicaid beneficiary rent subsidy & transitional housing support

Contact Michele Bianchi, Rapid Transition Housing Program, mbianchi@wilc.org or call 914-682-3926 (voice), 914-259-8036 (VP).

The Rapid Transition Housing Program (RTHP) is a statewide program to establish a rental subsidy and supportive housing services for high-need Medicaid beneficiaries and those who are defined by a hospital, managed care organization (MCO), medical respite, performing provider system (PPS) or skilled nursed facility as a homeless high-utilizer.

Eligibility

Michele Bianchi
Michele Bianchi
  • Having two or more inpatient stays in the past 12 months; or
  • Having five or more emergency department (ED) visits in the past 12 months; or
  • Having four or more ED visits and one or more inpatient stay in the past 12 months; or
  • Having stayed or currently in a skilled nursing facility (SNF) within the past 12 Months; or
  • Be within the top 20% of Medicaid recipients’ spending relative to the county of fiscal responsibility and target population parameters (e.g., an asthma recipient in Westchester has base period spending of more than 80% of the asthma Medicaid population in that county).

Documentation Needed To Meet Eligibility

  • E-paces showing active Medicaid
  • Written verification of physical disability & two chronic conditions by an MD
  • Proof of homelessness/unstably housed
  • Proof of identity
  • Current Award letter/income statements to meet HUD FY Extremely Low Income
  • Proof of ED visits/hospitalizations/SNF stay to show high utilization*

Services

Under RTHP, each participant is assigned a Housing Specialist (HS) and Independent Living Specialist (ILS) who assist in locating and subsidizing housing, as well as help get needed services and supports in place to ensure success in their new home. RTHP also assists with community transitional services, which include security deposits, moving expenses, utility payments, and household establishment purchases.

The RTHP is a statewide program. WILC covers the entire Lower Hudson Valley which includes Ulster, Dutchess, Sullivan, Orange, Putnam, Rockland and Westchester counties.

The RTHP subsidy is modeled after the Housing Choice Voucher (Section 8) and Olmstead Housing Subsidy program in that the individual will be required to pay 30% of their monthly income, less allowances, and the individual’s name will be on the lease. There is also funding available for “community transition services” which can include security deposits, moving expenses, utility payments and household establishment purchases.

NYSILC Seeking Input on the New York 3-Year State Plan for Independent Living (SPIL) 2025-2027

New York’s State Plan partners announced the formulation and development of the next 3-year State Plan for Independent Living (SPIL) for 2025-2027. The initial public comment period will take place between July – August 2023.

Click on the following link on the NYSILC website for more details – review the draft SPIL, attend SPIL hearings in person or online, take the SPIL survey, provide written comment/follow the facilitation outline, and refer to current SPIL projects and goals (or amended SPIL). Sign up to keep informed about the SPIL process. For more info on the in-person and virtual forums, visit our calendar here: https://nysilc.org/council/meetings-calendar.

If you have any other questions about the SPIL, the process, the New York State Independent Living Council, Inc. (NYSILC), or the State Plan Partners, contact Brad Williams, Executive Director of NYSILC, at bradw@nysilc.org, or (518) 427-1060 X104.

Braille FAQs Answered by the NYSCB Braille Advisory Committee

Braille FAQs

What is Braille?
Unified English Braille (UEB) is a tactile (touch) alphabet used by blind people to read and write. All Braille letters or symbols are formed within a Braille cell. Each Braille cell can contain up to six dots (two columns of three), numbered 1-6. The dots “raised” in each cell determine what the letter or symbol means. Braille is not a language but can be used when reading and writing any language, following its same rules for writing and punctuation.

Is Braille hard to learn?
Braille is taught on a one-to-one basis and can be learned by individuals at any age. For success in reading and writing Braille, an individual must be motivated to learn and practice as it takes time, patience and the ability to memorize and to recall what was learned. Because Braille requires the reader to feel the Braille cells, Braille may be challenging to learn for individuals with loss of feeling in the hands and fingers. Others with a cognitive impairment, dementia, Alzheimer’s, a history of strokes, additional disabilities or poor fine motor coordination may also have difficulty learning Braille. Blind and visually impaired children and adults who are learning English can simultaneously learn Braille for reading and writing purposes, provided they have a qualified instructor able to teach them.
What are Braille grades? Do I have to start learning Braille at Grade I?

There are two levels or grades of UEB. Everyone starts Braille instruction with Grade I, which is also known as uncontracted Braille. It consists of Braille letter-for-letter substitution of the print counterpart. Some individuals may wish to also learn Grade II Braille, or contracted Braille. Grade II Braille is made up of contractions that substitute shorter sequences for the full spelling of commonly occurring words or letter groups. Grade II Braille makes it possible to read more quickly and it requires less storage space.

How long does it take to learn Braille?
The time it takes to learn Braille often depends on an individual’s goals for using Braille. If an individual wishes to learn Grade I Braille only, the individual may be able to learn Braille in a few short months. If an individual wishes to fluently read and write Grade II Braille, the individual will need to learn contracted Braille, which can take more than one year to learn. The learner’s motivation and commitment to learning Braille will also impact the time it takes to learn.

Who teaches Braille?
A vision rehabilitation therapist (VRT) teaches Braille to adults who have English literacy. A teacher of students with visual impairments (TSVI) teaches Braille to children who are learning to read.
Hadley Vision Resources provides courses for individuals, sighted or visually impaired, to learn Braille by touch or by sight. Hadley uses a combination of online courses, Braille workbooks and audio instruction to teach Braille to new learners or those wanting to fine-tune their Braille skills. To get started, visit https://hadley.edu/.

How much does it cost to learn Braille?
If an individual has been declared legally blind by an eye doctor, the individual is eligible for services at no cost through the New York State Commission for the Blind (NYSCB). These services include Braille instruction.

What is the New York State Commission for the Blind and how do I contact them?
The NYS Commission for the Blind (NYSCB) is part of the New York State Office of Children and Family Services (OCFS). The mission is to enhance employability, to maximize independence and to assist in the development of the capacities and strengths of people who are legally blind. For more information or to find a local district office, you may call 1-866-871-3000.

I can use print to some degree so is there any reason for me to learn Braille?
The simple answer is yes. You may find Braille to be another useful tool in your communication toolbox. Individuals who have low vision may benefit from knowing Braille and using it for routine tasks or extended reading. Braille can reduce eye fatigue caused by holding papers close or reading for long periods. Braille can be more portable than other media, such as desktop computers, extra-large printed materials or reading machines. For a person with low vision, the final decision doesn’t have to be one medium only, but a combination of what works best for the situation.

There is evidence that visually impaired Braille users are more likely to be employed than visually impaired print users. Job seekers must be able to read quickly and efficiently to be competitive in the labor market. Many visually impaired individuals who rely on print read more slowly and have less stamina for prolonged reading than do their fully sighted peers. Braille readers can achieve reading rates comparable to those of print readers. For individuals whose vision is adequate to read print, but not adequate for competing successfully with fully sighted print readers, a combination of print and Braille may be the most viable option. They might want to use Braille for routine tasks, such as labeling and marking appliances or reviewing materials, while using print for accessing new information and editing. Other people choose to learn Braille so they can read smoothly when presenting publicly, confidently reading notes without concerns about having many pages, needing a teleprompter or holding papers in front of their face.

Your eye medical diagnosis may be another factor for considering Braille as a reading medium. If your medical eye condition is one where you may lose more vision, you may want to think about starting Braille lessons, so you have different reading media available to you. Since learning Braille takes substantial time, beginning lessons while you are able to use print may be helpful.

How could Braille help me in my everyday life?
Braille can be used the same way print is helpful, meaning frequent usage, usually dozens of times daily.
By using Braille, an individual may identify food items, cleaning supplies, medications, clothing and cosmetics. Braille can be used so an individual can set appliances at home or at work independently. It can be used to read a grocery list or a “to-do” list and review appointments for the day.

At work, Braille can be used for notetaking, organizing office materials and reading memos. Individuals can use Braille at work to locate the correct restroom and other places of importance independently. Combined with technology which allows a reader to access computer files, the Braille reader can perform all routine tasks at college or work. In the community, Braille signs, menus and ATM machines provide the reader the ability to independently choose a meal or the correct floor in the building and use the ATM. Of course, Braille allows the reader to enjoy reading for special interests, hobbies and recreation, just as print reading allows.

Math and music can be accessible using Braille codes designed for these fields as well.

If I learn Braille, where will I get books?
New York State residents who are legally blind individuals can obtain Braille books for free from the New York State Talking Book and Braille Library after submitting a patron application. Materials are sent directly to your home postage-free. Find out more at https://www.nysl.nysed.gov/tbbl. This library is part of the National Library Service. Patrons may receive several Braille books each month if the books are also in the library’s electronic collection. Braille books can also be purchased from printing companies which produce them.

Am I too old to learn Braille?
Braille can be learned at any age if the person is motivated, practices, has good cognitive skills and is able to differentiate the Braille dots. You may want to consider learning based upon your potential use of it. A motivated learner is welcomed at any age by an instructor.

My child is blind. Should we learn Braille?
A teacher of students who are visually impaired (TSVI) will work with your child’s educational team. The TSVI will assess if Braille should be part of the teaching goals and then provide instruction. As a parent, you may want to learn the same alphabet as your child so you can send personalized birthday and special occasion cards, play games, label items around the house, check homework and encourage literacy. There are “twin vision” children’s books with both print and Braille for families to share and enjoy together, even if you do not learn Braille. These books can be loaned from the Talking Book and Braille Library even before the child begins instruction, just as print books are available to sighted preschoolers.

Free Tax Prep for Working Families and Individuals

 

The Westchester-Putnam Workforce Board is providing free tax prep for working families and individuals.

To make an appointment, call:
United Way 211 helpline or 1-800-899-1479
The Volunteer Income Tax Assistance
(VITA) Program provides free help for people who qualify for the Earned Income Tax Credit (EITC).

For more information, visit: 2023_VITA-Flyers-Eng-Span_Pr6_013023

Rapid Transition Housing Program (RTHP)

The Rapid Transition Housing Program (RTHP) provides a rental subsidy and supportive housing services for high-need Medicaid beneficiaries. RTHP, previously known as Nursing Home to Independent Living (NHIL), is a Medicaid Redesign Team initiative funded by the Department of Health and administered by the New York Association on Independent Living. The program will be available in four areas of the state: Long Island, Syracuse, New York City and Rochester.

Eligible participants of the program are those individuals who are either currently enrolled in the program or are individuals with one or more documented chronic physical disabilities and have two or more chronic conditions (e.g., asthma, diabetes, substance abuse disorder (SUD)). Participants in the program must be on Medicaid and referred as homeless high-utilizers by a hospital, Managed Care Organization (MCO), medical respite, Performing Provider System (PPS), or skilled nursing facility (SNF).

The RTHP subsidy will be modeled after the Housing Choice Voucher (Section 8) and Olmstead Housing Subsidy program in that the lease will be in the individual’s name and he/she will be required to pay 30% of their monthly income, less allowances. There will also be funding available for “community transition services” which includes security deposits, moving expenses, utility payments, and household establishment purchases.

NYAIL is partnering with member ILCs to staff Housing Specialists and Independent Living Specialists in the areas being served to provide outreach and assist eligible individuals with RTHP enrollment, unit selection, service planning and linkage to providers as needed.

 For more information, contact Michelle Bianchi at mbianchi@wilc.org or call 914-682-3926. 

Social Security Accelerates Decisions for People with Severe Disabilities

Kilolo Kijakazi, Acting Commissioner of Social Security, announced 12 new Compassionate Allowances conditions: Angioimmunoblastic T-cell Lymphoma, Blastic Plasmacytoid Dendritic Cell Neoplasm, Gerstmann-Straussler-Scheinker Disease, Microvillus Inclusion Disease – Child, Mowat-Wilson Syndrome, Myelodysplastic Syndrome with Excess Blasts, NUT Carcinoma, Pfeiffer Syndrome – Types II and III, Pontocerebellar Hypoplasia, Posterior Cortical Atrophy, Renal Amyloidosis – AL Type, and Sarcomatoid Mesothelioma.

The Compassionate Allowances program quickly identifies claims where the applicant’s condition or disease clearly meets Social Security’s statutory standard for disability. Due to the severe nature of many of these conditions, these claims are often allowed based on medical confirmation of the diagnosis alone. To date, more than 800,000 people with severe disabilities have been approved through this accelerated, policy-compliant disability process, which has grown to a total of 266 conditions.

“The Social Security Administration is committed to reducing barriers and ensuring people who are eligible for benefits receive them,” said Acting Commissioner Kijakazi. “Our Compassionate Allowances program allows us to strengthen that commitment by accelerating the disability application process for people with the most severe disabilities.”

When a person applies for disability benefits, Social Security must obtain medical records in order to make an accurate determination. The agency incorporates leading technology to identify potential Compassionate Allowances cases and make quick decisions. Social Security’s Health IT brings the speed and efficiency of electronic medical records to the disability determination process. With electronic records transmission, Social Security can quickly obtain a claimant’s medical information, review it, and make a fast determination.

For more information about the program, including a list of all Compassionate Allowances conditions, please visit www.socialsecurity.gov/compassionateallowances.

To learn more about Social Security’s Health IT program, please visit www.socialsecurity.gov/hit.

People may apply online for disability benefits by visiting www.socialsecurity.gov.

To create a my Social Security account, please visit www.socialsecurity.gov/myaccount.

National Infant Formula Shortage Patient Information

Resources provided by Yale New Haven Children’s Hospital 

What should I do if I am having trouble finding formula?

  • For most babies, you can safely switch between brands (including formula and store brands). They are similar and have everything your baby needs.
  • If your baby has special nutritional needs and requires a specialty formula (e.g., hydrolyzed or amino-acid based), please check with your pediatrician as most formulas cannot be safely substituted.
  • For new parents, breastfeed even if you plan to also give formula. Getting breast milk at the very beginning of life is important. Your breastmilk can also be frozen and saved for when you are not there to feed your baby or if the formula shortage continues.
  • Contact your pediatrician or local WIC (Women, Infants & Children) office who may be able to suggest places where formula is available.
  • Check smaller stores which may have more supply than larger stores.
  • If you are buying formula online, be careful of scams. Look for grammar and spelling errors in the ads.

What should parents NOT do?

  • Do NOT water down the formula. Your baby will not get what they need to grow. Too much water can also be dangerous and can cause seizures. Always mix formula exactly as directed by the manufacturer.
  • Do NOT make your own formula. Formulas are made to match what babies need to grow. This is not easy to copy. Home-made formulas could also contain germs that are not safe for your baby.
  • Do NOT use cow’s milk, goat’s milk or other milks (for example, almond milk) and milk substitutes. These do not have what your baby needs.
  • Do NOT buy formulas from outside of the United States or from online auctions. Imported formula is not reviewed by the FDA.
  • Do NOT hoard formula. If everyone buys formula for 2 weeks at a time, there should be enough formula for all babies.

What else can I do?

  • Share formula with family and friends in need. Work together to make sure everyone has what their baby needs.
  • If you are receiving CT WIC benefits, Abbott is allowing substitutions. If you have WIC benefits and are having trouble obtaining products please email or call your local WIC office.
  • CT WIC website for participants: https://portal.ct.gov/dph/WIC/WIC 
  • CT WIC website for retailers: https://portal.ct.gov/DPH/WIC/Retailers 

Call your pediatrician if you have any questions.

Additional resource from the American Academy of Pediatrics:
https://www.healthychildren.org/English/tips-tools/ask-the-pediatrician/Pages/Are-there-shortages-of-infant-formula-due-to-COVID-19.asp 

Putnam County Commissioner of Social Services Warned About Fraudulent Website

The Office of Mental Health has been advised of a fraudulent, and potentially illegal, website that offers to direct internet users to mental health services in their community. While the website does list legitimate facilities and services, it uses a false toll-free telephone number that connects users to a center that collects financial and personal data as well as protected health information from callers.

In at least one instance, the center advised a caller that there were no services available in their region and attempted to steer the caller to a service provider in Florida. OMH is pursuing this matter with law enforcement, and we ask that you advise your clients and others. For people seeking mental health services, OMH’s Mental Health Program Directory is a trustworthy source.

NY Rollin’ KNICKS Clinch 4th NWBA National Basketball Championship

The New York Rollin’ KNICKS won the 2022 National Wheelchair Basketball Championship (NWBA) on April 2, 2022 in Wichita, Kansas beating the Dallas Wheelchair Mavericks 59-53.

This year’s NWBA National Championship Series featured a total of 40 teams from the Adult Division and 50 teams from the Junior Division.  All Adult Divisions began playing on Thursday, March 31st and ended on Saturday, April 2nd.  This was the 74th season for the NWBA.

Heading into the National Tournament, the Rollin’ KNICKS were seeded #2 in the country.  Team roster was Steve Serio, Patrick Anderson, Christopher Bacon, Kevin Grant, Joe Gugliotta, and Ryan Martin.

Co-sponsored by the New York KNICKS/Madison Square Garden, Westchester Independent Living Center (WILC) and the Wheelchair Sports Federation this was the team’s 4th NWBA Championship.  They also won the Championship in 2014, 2018, and 2019.  After not playing for the past 2 years due to COVID restrictions, this was a major season and Tournament for the NWBA.  Steve Serio of the Rollin’ KNICKS was the MVP.

For more information and/or to watch saved livestreams, visit the NWBA’s Facebook page.

 

National “Slam the Scam” Day – Letter from SSA

Dear Colleague,

The Inspector General for the Social Security Administration (SSA) has designated March 10, 2022 as National “Slam the Scam” Day—an outreach campaign to raise public awareness of Social Security scams and other government imposter scams.  This is part of National Consumer Protection Week, March 6 – 12, 2022.  We are asking you to share information about “Slam the Scam” Day with your clients, friends, and family.

In 2021, the Federal Trade Commission (FTC) received over 396,000 complaints of government imposter scams.  Nearly 9% said they lost money to a scammer—more than $442 million.  To prevent further losses, we urge everyone to use caution when receiving calls from someone claiming to be from a government agency.

Here are a few things to remember and share with clients, friends, and family.  We will never:

  • Threaten arrest or legal action if someone does not immediately send money to resolve an overpayment.
  • Promise to increase benefits or resolve identity theft issues for a fee or by moving money into a protected account.
  • Require payment with a retail gift card, prepaid debit card, cryptocurrency, wire transfer, internet currency, or by mailing cash.
  • Send text or email messages that contain personal information.

Our scam prevention message is simple:

  • Hang up on suspicious calls from “government officials” calling about a problem with your Social Security number or account.
  • NEVER make payments with gift cards, wire transfers, or by mailing cash.
  • Report Social Security scams to OIG.SSA.GOV.
  • Report other scams to reportfraud.ftc.gov.

Visit OIG’s Press Kit for additional resources related to “Slam the Scam” activities.  Read and share our Scam Awareness Toolkit and Scam Alert infographic.

Together, we will remain vigilant against government imposter scams and help protect people from fraud.

Sincerely,

Jeffrey Buckner
Associate Commissioner

Office of Strategic and Digital Communications