Healthcare Quality and Disability: A Conversation with WILC Experts

October marks Healthcare Quality Awareness Month, a time to recognize the importance of safe, effective, and person-centered care. For people with disabilities, quality healthcare isn’t just about a doctor’s visit; it’s about access, communication, advocacy, and addressing the social factors that shape overall health. To explore these issues more deeply, we sat down with two WILC experts: Aimee Parks, Director of Regional Resource Programs, and Joan O’Brien, Outreach Specialist with NY Connects. In Part 1 of our conversation, Amy and Joan share what healthcare quality means in practice, the challenges their clients face navigating the system, and why advocacy and person-centered care are essential.

This is just the first half of our conversation with Aimee and Joan. In Part 2, we’ll dive into WILC’s new Diabetes Prevention Program (DPP), developed in partnership with OPWDD, and how it empowers people with developmental disabilities to take charge of their health through education, community, and practical tools.

AUDIO TRANSCRIPTION:

So Joan, maybe we’ll start with you. You can just introduce yourself and just tell us about a little bit about what you do.

Okay, my name is Joan O’Brien.

My agency is Westchester Independent Living Center and my program is New York Connect where I work as an outreach specialist. I provide my clients with information about resources and services available in their community, including but not limited to housing, benefits, transportation, nutrition, and long-term supports such as home care. I also will assist clients with the application process for some of the services that I mentioned and even when necessary conduct a home visit if that’s needed.

Aimee, if you want to introduce yourself as well.

Sure, Aimee Parks. I’m the Director of Regional Resource Programs with Westchester Independent Living Center.

I oversee or manage, is a better word, seven of WILC’s regional programs. So in regional, I mean they’re covering the lower Hudson Valley counties which consist of Westchester, Rockland, Orange, Putnam, Dutchess, Ulster, and Sullivan. So a wide, wide, vast area.

The majority of the programs that I manage are programs that help folks connect to services in order to either transition out of a facility in a safe manner and continue living in the community and or seeking and obtaining the services that they need in order to stay in the community. So, you know, lots, lots of what Joan says overlap with all the seven programs that I that I manage and we all work very closely. We’re not teams but a team.

So that’s, you know, what we pride ourselves on for sure.

So what does, what does this word health care kind of bring up as it pertains to the work that you do? You know, what does, how do you approach the idea of attaining quality health care for the clients that you work with? And how, why is that important?

I think the main thing that we experience with our clients that we work with is the struggles that they have connecting to quality health care providers that also take oftentimes are the folks that we work with are on Medicaid. And so, you know, it’s hard to find quality, timely health care in general for all of us. And then you add that Medicaid piece onto it and it can become a little challenging and, you know, the options dwindle.

The other thing that is really important in the work that we do is not only the quality and the timely manner of services that are obtained, but through professionals that have experience working with folks with disabilities of all kinds so that they can, you know, have that connection with their providers and not just feel like they’re being talked at, right? That there’s a, there’s a communication flow on what their needs and wants really are in terms of their health. I’ll piggyback a little bit on that. Accessibility can sometimes or oftentimes become an issue.

I’m not talking about wheelchair accessibility, perhaps in the medical office, but sometimes there will be a transportation issue where a person, for example, and I’ve encountered this many times, where a person, for example, has Medicaid transportation, which will bring them to their appointments. However, when they have to go out of counting, there’s this whole rigmarole that they have to go through. And that’s where I have come in, where I’ve advocated for them and helped them navigate that because for a lot of people with various disabilities, it’s hard to do that.

If you have a visual hearing, cognitive decline, or perhaps an intellectual disability, it’s hard enough managing certain appointments, but when you have to kind of fight with the transportation company, the Medicaid transportation company, that becomes an issue. So there too, that’s always been a concern of mine because a lot of those appointments, as Aimee said, they had to do with going out of county to get really good medical care. So that’s another issue that I’ve faced in my work.

And that also, I think, enhances the need for strong advocates, maybe not on a consistent basis, like in other words, consistent, meaning somebody may not need an advocate seven days a week, 365 days a year, but when they experience an issue with transportation or finding a medical provider or whatever, housing, whatever it may be, that they have the knowledge of where to go to get some help advocating. Not that we take their voice from them. We just stand behind them and root them on and we’re almost supporting them using their voice to the best of their ability to get what they need.

Absolutely. Oh, I’m sorry. Go ahead, Joan.

No, I was just agreeing with Aimee. Advocacy has become a huge part of my role. I have had persons that faced eviction and simply didn’t know that they could have time to at least explore other housing options.

So I’ve worked actually with sometimes lawyers or the courts to get them extensions. Even though we’re kind of going off the medical portion of this, the advocacy comes in in many areas, many areas. And everybody’s social needs affects their health.

Yours, mine, Joan’s, doesn’t matter if you have a disability or you don’t, your social components greatly affect the quality of your individual health. So it’s important to have resources and have somebody, even if they’re not your friend, they’re in your corner, right? Absolutely. They have the knowledge.

One thing that I pride myself, I’m working for this agency, for this program, is that I cannot tell you all the times I phoned someone that was referred to me by Aimee. And one of the first things they said was, thank you for calling back. And I was like, well, of course.

Well, I didn’t even know who you were at first because I’ve called so many agencies and no one ever calls me back. You know, so I take a lot of pride in that, a lot of pride in that. And I can’t speak for my peers, but I could almost guarantee that they’ve heard the same thing over and over and over again.

So I find myself, my peers find myself at times with Aimee’s blessing going a little bit out of our roles sometimes because we don’t want them to fall through the cracks. Okay. We are not case management, but Aimee can attest to this.

There have been times when I think all of us working with a particular client or clients have stayed on a bit longer to make sure that they got what they needed. And I am so proud of this agency and this program for that alone. That’s amazing.

It means something to you personally to be able to identify the challenges and the gaps to step in and to fill that in, even when it’s above and beyond what’s, you know, maybe technically in your job description, but, you know, like you’re saying, this is, this is more than just like a, a healthcare matter. It’s a personal thing. These are people.

Right. Correct. So, and I agree about the, the kind of wider scope of components about this.

It’s not just a visit to the doctor’s office. There’s a social component to people’s health, where they live, who’s around them, their past, their present! So it sounds like kind of the gaps and barriers and challenges that come up are both within the doctor’s office, maybe being able to communicate, understand them, treat them accordingly, and not just in this one size fits all type of approach, financial barriers, social barriers.

Is there anything else that you would add or just mention in that topic of things of where certain gaps or barriers come up for people with disabilities in the healthcare system? Or do you feel like we kind of covered?

I do think that, you know, the social determinants of health is a more, is a, is, has been widely expanded, right? We’re all kind of thinking in a different way, most recently about healthcare because of the addition of the attention to social determinants of health. So financial, if you’re financially strapped and continuously concerned about paying your rent, buying food, paying for daycare, whatever it is, that affects you, right, internally, your health. So it’s all these outside things.

If you want to pursue an education, but you don’t have the means to, or you don’t know where to start. So it’s almost like a global approach to a human being. And I think that that, honestly, the state of New York has really put a focus on social determinants of health, you know, in the most recent years.

And I think that that’s a wonderful addition to what we do because oftentimes somebody will call us for one issue, say housing, and through Joan’s wonderful conversation style, she pulls out of them that they’re really experiencing other things that are just piling on top and affecting their health and impacting, you know, their ability to live a healthy life. So having that not rushed, you know, we’re not on the phone. I don’t say to my staff, you have 15 minutes to figure it out and get them what they need.

Never. And kind of the routine and cycle with your doctor, they have such limited time to see so many people that they don’t often get to those deeper layers or the bigger picture of what’s going on. Right.

So I’m hoping, I don’t think that social determinants of health have trickled down to the providers themselves as of yet, but I do hope because we’re all talking about it on another level that they will catch on and see that perhaps they need to be looking at things with a different lens, really. And also that speaks once again to person-centered communication. Oftentimes, I’ve spoken with clients that had called, you know, other service, you know, providers, if you will, or agencies to assist them, and they’re being pressured to do certain things.

Well, this is what you have to do. And I always tell them, you know, I’m coming from a person-centered position here and I can suggest things to you. Okay.

But the ultimate decision is yours. And sometimes they act really surprised about that because depending on their disability, they’ve been told what they should do a million times. And then the major caveat is some of those agencies don’t follow up with them.

So, you know, they’re pressured. You got to file this right away, or you weren’t supposed to do that, or you can’t apply for this. And then there’s no follow-up.

So there’s a lot involved. I’ll put it that way.

Stay tuned for Part 2!

Back to School with Confidence: Expert Advice for Parents of Students with Disabilities

As a new school year approaches, many parents of children with disabilities find themselves asking: Is my child ready? There’s a lot to consider when preparing for a smooth, independent transition back to school. At the Westchester Independent Living Center, our team works year-round to support families in building confidence, skills, and independence for students with disabilities. In this Q&A, WILC experts weigh in with practical advice and key considerations to help parents feel prepared and empowered ahead of the first day of school.

From Denise Green, Parent Training and Information Center Coordinator

What does “independence” look like for a student with a disability—(and how can that differ from student to student?)

Independence for a student with a disability can look different from what it does for their same-aged peers. For some students with a disability, it can mean assistance and care 24/7. They could be nonverbal and need to learn an alternative means of communication. Some may have significant behaviors requiring interventions. Others may be behind their peers and need a smaller classroom to learn the material, while others need gentle reminders to refocus on the lesson, while others need the lesson retaught or broken down into smaller chunks.

For some students, independence can be navigating the classroom or school building with or without support. For others, it could be using tools taught in counseling to navigate social interactions with peers and teachers or learning to take turns. Some may need modeling, while others may need social stories

Teaching independence means building upon strengths that the student already has. When increasing a student’s independence, lessons should focus on:

Building their confidence and self-esteem so they know that they can do it,
Becoming increasingly more self-sufficient,
And increasing their self-advocacy skills

Independence allows a student to meaningfully participate in school, at home, and in the community to the fullest extent possible. It allows them to grow and helps prepare them for their future dreams. Independence will look different for each student with a disability as it does for all students, but the end goal is the same to allow the student to become as independent as possible.

What are some early indicators that a student may need extra support, or is ready to take more ownership over their day-to-day school routine?

There are many indicators that your child or teen may be struggling in school and needs support. Here are some of the most common ones:

Child/teen goes to the nurse’s office frequently, complaining of a headache or stomachache.
Homework is a battle.
Homework takes longer than it should for the grade the child is in. As a general rule, homework should not take more than 10 minutes per grade, so a fourth grader should not have more than 40 minutes of homework.
Child/Teen can not complete homework without parental assistance. Students of all ages should be able to complete homework on their own.
Child/Teen shows a strong dislike of school or says they hate school.
Child/Teen says they are stupid. Everyone else can do blank, but I can’t.
Child/Teen starts taking longer to get ready for school, coming into school late.
Child/Teen start showing anxiety on Sundays.
Frequently gets stomachache or headache on Sunday night or Monday morning.
Child/Teen refuses to go to school.
Child is more than a ½ year behind in reading. You need to know your child’s reading level and what reading level they should be at.
Your parental instincts are telling you something is wrong. Believe your instincts.

From Robin Llaque, Educational Advocate & parent

How can parents help their child become more confident in communicating with teachers or school staff when they need help?

Fostering open communication at home by creating a safe place to allow your child to share their thoughts and feelings without judgment.
Regular check-in’s: schedule daily time to discuss their day at school including any challenges they may be experiencing.
Pay close attention when your child is talking, ask clarifying questions, and reflect back on details to show you understand.
Validate your child’s feelings, even if you don’t understand them, allow them to feel heard.
Model effective communication and possibly even perform some practice scenarios with your child to provide experience that they can then carry over with teachers, staff or peers.
Prepare scripts, simple phrases or questions they can use in specific situations for ex: “ can you explain this again, please?
Focus on the positive, practice scenarios with a positive tone, emphasizing that asking for help is a sign of strength and advocacy.
Encourage your child to initiate communication especially as they transition into middle school and high school and beyond by encouraging them to email their teachers or counselors directly.

What’s one piece of advice you give every parent preparing a student with a disability for a more independent school year?

The best thing parents can do is to work with their child on fostering self-advocacy skills so that they can feel empowered but to also teach them that if for any reason they aren’t feeling heard despite their self- advocacy, it is always okay to come to you as their parent.

From Fiona Rattray, Parent Training & Information Center Specialist & Parent

What role does assistive technology play in promoting school independence, and what tools should parents be aware of?

Assistive technology can refer to any kind of tool that supports a child’s learning. This can range from something as simple as a pencil grip, to learning apps, to more complex technology such as speech-to-text software or communication devices.

The beauty of assistive technology is that it can often be tailored to your child’s individual needs. It doesn’t necessarily require constant adult support, and it can empower children to learn more independently.

Important factors to consider when exploring new assistive technology:

Assessment:Ensure your child is assessed by someone trained in, and familiar with, a wide range of assistive technology tools.
Training:Your child may need guidance or training in order to use the technology effectively.
Comfort level:Gauge your child’s comfort when using the tool. For example, consider sensory sensitivities or any concerns around stigma.
Monitoring:The use of technology should be monitored regularly to ensure it continues to meet your child’s needs.

Here are three commonly used types of assistive technology

Communication Supports (AAC – Augmentative and Alternative Communication)

This can include speech-generating devices, communication boards, or apps like Proloquo2Go.

These tools give children with speech or language difficulties a voice. They help them join in class discussions, talk with friends, and take part in learning.

Learning and Literacy Supports

Things like text-to-speech or speech-to-text software, audiobooks, graphic organizers, and learning apps.

These supports make reading, writing, and processing information easier. They help children access schoolwork at their level and show what they know without being held back by reading or writing challenges.

Access and Participation Supports

This might be adaptive seating, pencil grips, alternative keyboards, switch systems, or screen readers.

These tools remove barriers. They make it possible for children to take part in classroom activities, complete their work, and learn alongside their classmates.

As we head into a new school year, what should parents keep in mind when updating IEPs or 504 plans?

The question that always comes up is: have your child’s needs been properly identified?

There is only so much schools can do, IEPs are built on the needs identified through evaluations, classroom observations, parent input, progress reports, and report cards. But if you think about the size of an average classroom, there is only so much a teacher can realistically uncover about your child’s unique learning needs.

Learning is complex. That’s why, as a parent, it’s important to stay alert for factors that may be affecting your child’s learning — whether they are strengths or challenges.

You can do this by checking in weekly with your child and reviewing their schoolwork. If you notice red flags, that’s the time to begin documenting what you see. For example:

Keep copies of written work that show difficulties with spelling, grammar, or written expression.
Note if your child is coming home every day completely overwhelmed — perhaps shutting themselves away or having meltdowns.
As a parent, your documentation of these patterns is a powerful tool in making sure your child’s needs are recognized and addressed.
If concerns are coming up every day, you can take things a step further by keeping a daily log. This helps you track patterns and gives you concrete examples to share.
This is also the time to reach out to your child’s teacher and express your concerns. It’s normal for children to need some time to settle back into school after summer vacation. But if you’ve been noticing issues since day one, and it’s now October, it may be time to request a program review.

Batter’s Intervention Program

The Batter’s Intervention Program offers guidance to individuals that have been violent in their relationships. The curriculum helps individuals understand what is behind their abuse and how to change.

Gichel Walters in her office at WILC — Director Minority Outreach

Contact Gichel Walters, Director Minority Outreach and Re-Entry Programs, gwalters@wilc.org or call 914-682-3926 (voice), 914-259-8036 (VP).

The 2025 WILC Disability Pride Art Showcase

Welcome to the WILC 2025 Disability Pride Month Art Showcase celebrates the powerful voices, creativity, and resilience of individuals with disabilities in our community. Each piece a reflection of lived experience, and self-expression.

Read Our Previous Blog: Art Without Limits: Celebrating Disability Through Creative Expression

Join our Disability Pride Virtual Poetry Slam July 30: Voices Without Barriers: Virtual Poetry Slam

Be a part of our community! Sign up for our monthly newsletter, and follow us on Facebook, Instagram and LinkedIn)

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Art Without Limits: Celebrating Disability Through Creative Expression

Creativity knows no bounds—more than just an outlet, it can be a form of communication, healing, self-determination, and advocacy. For many people with disabilities, art is a way to tell stories the world doesn’t always stop to hear. As a community at Westchester Independent Living Center, we know that self-expression through the arts is a powerful, liberating act that defies limits and can inspire a sense of visibility and pride.

This July, as we mark Disability Pride Month, WILC is proud to host the following:

WILC Disability Pride Art Showcase (All July): Our annual virtual exhibition highlighting works created by artists with disabilities throughout our community.
Voices Without Barriers Poetry Slam (July 30, 1-2pm on Zoom): A virtual event celebrating the power of self-expression across all types of disability.

(Submission details for both can be found at the bottom of this blog.)

The Power of Expression: Why Art Matters

Art is a universal language that can say what words sometimes cannot. For individuals with disabilities—particularly those with physical or cognitive limitations—art-making can offer a profound sense of agency. Whether someone is navigating a new diagnosis, reclaiming their identity, or simply exploring their creativity, art provides a nonjudgmental space for discovery and empowerment.

Each medium—from painting, digital illustration, photography, to sculpture, or mixed media—offers a different way to express one’s story, values, or inner world. Some may find calm in brushstrokes, others in the click of a camera shutter or the texture of clay.

Art is also a deeply validating practice. It allows individuals to be seen not through the lens of limitation, but through the beauty of their imagination, insight, and lived experience.

Inspiration from the Masters: Famous Artists with Disabilities

As we approach Disability Pride Month and our own celebrations of artistic expression in our community, let’s honor the legacy of artists with disabilities who have reshaped the world of art and culture. Their contributions prove that creativity thrives regardless of ability.

Here are just a few powerful examples:

Frida Kahlo – The iconic Mexican painter, who lived with chronic pain and disability after a bus accident, expressed her physical and emotional struggles through vivid self-portraits.

Chuck Close – Known for his massive-scale photorealistic portraits, Close created groundbreaking work even after becoming paralyzed, using custom tools and assistive technologies to paint.
Judith Scott – A visual artist born with Down syndrome and deafness, Scott found her voice through intricate fiber sculptures now displayed in museums worldwide.

Each of these artists challenged stereotypes, advocated for visibility, and demonstrated the transformational power of creative expression.

Join the 2025 WILC Art Showcase

We invite you to submit original artwork and help us honor the diversity, talent, and resilience within our community. Whether you’re an experienced artist or creating something for the very first time, we hope you’ll share your creations. Submit your art via email to ebussian@wilc.org by July 1^st. Visual & Written Formats Accepted | Anonymous Submissions OK.

More this Disability Pride Month: WILC Virtual Poetry Slam

To conclude Disability Pride Month, WILC is hosting our Voices Without Barriers: Virtual Poetry Slam on July 30^th, 1–2 PM. Whether you’re a seasoned writer or trying something new, this is your chance to share your voice and connect with others through the power of words. Submit your poem by July 11th to Azzura’e Wilson at Awilson@wilc.org to RSVP and take the virtual stage.

Art allows us to connect, communicate, and celebrate the many dimensions of disability and identity. From renowned disabled artists who’ve shaped history to everyday creative expression in our community, creativity is a force for inclusion and empowerment.

Resource Guide: At-Home Activities for Students with Autism

Looking for engaging, sensory-friendly, and skill-building activities for your child with autism? WILC has curated a free downloadable resource packed with 20+ pages of fun and purposeful at-home options—from classic board games and calming sensory ideas to screen-based favorites like Minecraft, Animal Crossing, and educational apps like Zoombinis.

Whether you’re a parent, caregiver, or educator, this guide is full of practical tools to help support creativity, connection, and learning at home.

Click here to view and download the PDF:
At Home Activities for Students with Autism

Beyond the Ramp: What Accessibility Really Means in 2025

At Westchester Independent Living Center, accessibility is more than a concept—it’s a lived reality, a daily mission, and a call to action. “Accessibility removes barriers and unlocks the possible.” That’s the rallying call behind Global Accessibility Awareness Day (GAAD)—a global initiative to get everyone talking, thinking, and learning about digital access and inclusion. For GAAD, we asked 3 members of our team to reflect on what true accessibility means in 2025, and where the work still lies ahead:

Azzura’e Wilson – Transition Specialist, Post-Rehabilitation Transition Program (PRTP) at WILC
Meg Valenzuela, MS Ed – Program Director of Independent Living Services, Putnam Independent Living Services (PILS)
Joe Guagliano – Legislative Advocate, Westchester Independent Living Center (WILC)

What are the less obvious—but equally important—barriers to accessibility?

While ramps and elevators are essential, they’re just the tip of the iceberg. WILC staff named a wide range of invisible or overlooked barriers that deeply impact people with disabilities:

Signage—or lack thereof—can be a silent obstacle. Joe recently visited a library where the lack of signage pointing to an accessible entrance led him to climb a flight of stairs using a walker. For someone in a wheelchair, that could have meant total exclusion.
Lack of accessible transportation options. Azzura’e, a wheelchair user and recent Westchester resident, has already experienced the challenge of inaccessible taxis. This isn’t just inconvenient—it limits independence and opportunity.
Inadequate public infrastructure. Whether it’s grocery aisles cluttered with displays, bathrooms that don’t accommodate wheelchairs, or the need for more Accessible Pedestrian Signals for blind or low-vision pedestrians, the list of overlooked needs is long.
Digital and educational barriers. From the absence of sign language interpretation to insufficient testing accommodations, barriers can also be informational and institutional.

What does true accessibility look like?

For our team, it means equal access—plain and simple.

“Everyone with a disability has the right to access their community equally,” said Meg. That includes entering a doctor’s office with an accessible exam table, parking without fear of being towed, and accessing a bathroom that actually fits a wheelchair.

Azzura’e emphasized dignity: being able to travel, work, and participate in society comfortably and independently—just like anyone else.

How is WILC working to change things?

WILC tackles inaccessibility both systemically and personally:

The Accessible Restaurant Project identifies and supports restaurants in Putnam County that meet accessibility standards, and even helps others make improvements. Participating businesses are recognized on WILC’s website and newsletter.
Polling Site Surveys ensure democratic participation by checking voting sites for accessibility.
Support for individuals includes helping clients find accessible employment, navigate post-rehab transitions, and connect with peer support.

“We often hear conversations about equality for race, gender, or sexuality—but what about accessibility?” asked Azzura’e. “At WILC, we make sure everyone is seen and treated as equal.”

What gives you hope?

Sometimes, it’s the small wins that shine the brightest.

For Azzura’e, WILC itself is proof that change is possible: “When I came across this job, one of the requirements was to have a disability. That shows the inclusiveness and equality that WILC brings.”

What’s your message to policymakers and businesses?

Meg and Joe offered this challenge:

“If your loved one had a disability, what changes would you make to ensure they had equal access? Would they need a ramp? Large print menus? Level entrances?”

Azzura’e added:

“Without inclusiveness and equality for individuals with disabilities, this world may never be equal… One policymaker or business can’t change the world, but they can start change where they are.”

Join the Movement

GAAD is about recognizing that accessibility is everyone’s responsibility—and everyone’s opportunity. At WILC, we are committed to advocating for policies, practices, and communities that center inclusion, equity, and dignity for all.

We invite you to join us in celebrating the progress we’ve made—and committing to the work ahead. Because accessibility isn’t just about ramps. It’s about removing barriers and unlocking the possible—for everyone.

WILC Joins Call to Protect Medicaid Access in New York

On Wednesday, April 17, Westchester Independent Living Center joined elected officials, community advocates, and partner organizations in speaking out against proposed federal changes that could significantly impact Medicaid funding and access across New York.

The event, held at Helen Hayes Hospital in West Havershaw, featured remarks from U.S. Senate Majority Leader Chuck Schumer, who warned that the proposed Medicaid cuts—currently part of a House budget proposal—could jeopardize essential care for millions of New Yorkers, particularly seniors and individuals with disabilities.

Representing WILC at the press event was Joan O’Brien and Veronica Brockett, longtime advocates for disability rights and community-based services. WILC proudly stood with coalition partners to emphasize how Medicaid supports independent living, home- and community-based care, and access to critical services that allow people with disabilities to thrive outside of institutional settings.

More than 7 million New Yorkers currently rely on Medicaid. For many of WILC’s consumers, these services are not optional—they are foundational to health, safety, and self-directed living in the community.

WILC remains committed to advocating for policies that protect and strengthen access to care. We than

k Senator Schumer and all of the community voices who are helping to raise awareness of the importance of Medicaid and the role it plays in ensuring equity and dignity for all.

From a Parent’s Heart: Honest Reflections on Raising Autistic Children from WILC/PILS Team Members

April is Autism Awareness Month—a time to elevate understanding and celebrate neurodiversity. At WILC and PILS, some of our team members bring not only professional expertise, but personal experience as parents of autistic children. Here, they share heartfelt reflections on what parenting on the spectrum has taught them.

To explore upcoming programs, workshops, and helpful resources for families and caregivers, visit the Calendar of Autism Awareness Month Events, or find upcoming webinars listed at the end of this blog. Stay connected as we continue to support and learn from one another.http://Calendar of Autism Awareness Month Events

From Robin LLaque, Educational Advocate

What does being a parent of a child with Autism mean? It means to love your child like any other parent should love their child and that is without conditions. Children will show you love and all things beautiful in many different forms, you just have to allow yourself to see it and enjoy that moment and celebrate it. For parents of a child with Autism it makes the small sweet gains that much more beautiful — you learn to cherish the little things. Some parents won’t ever know what that feels like because their child might be hitting every benchmark and are excelling in areas that your child might not be at this time or ever but that is okay; it teaches you what is important and who is important in your life and your child’s life, and to not sweat the small stuff — life is too short.

From Fiona Rattray, Parent Training & Information Specialist

I come from an artistic family and went to a specialist art high school. Consequently, during my youth, people would frequently ask if I was artistic and I would jokingly answer ‘No, but I’m autistic’ (in the 1970s we didn’t know better). Little did I know that I would grow up to become the mother of two autistic children.

Before becoming a parent in the late 1990s, I was a special education teacher and was sent to do training on something called Asperger Syndrome. None of this prepared me for the shock of discovering that my bright and articulate kindergartner was struggling in school and suspected of having autism. I remember staring at the teacher with incredulity and muttering, “What on earth are you thinking? She makes eye contact, she smiles, she jokes, of course she’s not autistic!”

Now, I know better and I do better. We have come along way with our understanding of autism in the past 50 years but there is still much more to learn.

My kids are now 26 and 18. They are both entirely different people. In fact you could say they are like chalk and cheese.

My eldest has a superior IQ and can present as neurotypical, yet she is the one whose life is most negatively impacted by her autism. She couldn’t bear school and left at 16.

My youngest was severely delayed as a child, and is painfully shy, with limited verbal expression, but he loved school and is now attending four year college.

Both of my kids and the scores of people with autism I have since met (including my father-in-law, who was diagnosed in his 70s), are amazing human beings with unique and valuable insights. We need to keep advocating and fighting for their voices (verbal and non-verbal) to be heard, otherwise we are missing out on their potential to make an important and valuable contribution to society.

From Rosemary Engel, Bilingual Education & Outreach Specialist

“The joy of witnessing a child’s spark of understanding is a happiness that fills my heart and brings a spark of life back into to me.” “That light is a beautiful thing”.

Upcoming Webinars & Events with WILC/PILS

April 22 @ 6:30 pm – 7:30 pm Webinar: Advocating For Your Autistic Child
April 23 @ 6:30 pm – 7:30 pm Webinar: Sensory Issues
April 26 @ 11:00 am – 2:00 pm Putnam Autism Awareness Walk
April 28 @ 11:30 am – 12:30 pm Webinar: OPWDD
April 30 @ 11:30 am – 12:30 pm Webinar: Google Suites (Assistive Technology)
April 30 @ 6:30 pm – 7:30 pm Webinar: Preparing for Summer

ACTION ALERT: Ask Secretary Kennedy and Congress to Protect ACL Programs

We need your help to protect vital services for people with disabilities and older adults. The Administration for Community Living (ACL) was created in response to the disability community’s efforts to improve services and supports, mitigate fragmentation, and increase coordination between programs. Now, efforts to dismantle ACL could undermine these critical services, putting many at risk.

What’s on the Line

This restructuring may lead to fewer resources and more barriers to the programs and services we depend on. These programs give disabled people the tools to live with dignity, freedom, and independence. They ensure that we stay in our communities and are able to live life on our own terms instead of being forced into institutions.

Why This Matters

The programs currently provided through ACL give us a chance to live with self-sufficiency, reducing reliance on institutional care and saving taxpayer money.

These decisions have been made with no engagement or transparency with the disability community and will likely cause huge disruptions for people with disabilities and aging adults. Without ACL, many of the hard-won advances in disability rights could be undone.

Take Action

It is important to contact both Congress and Secretary Kennedy.

1. Contact your members of Congress: Use NCIL’s Advocacy & Action Center to ask your members of Congress to exercise Congressional oversight authority.

2. Call Secretary Kennedy’s office at 202-690-7000 and leave a message when prompted. Sample script:

“I am calling to express my concern about changes to the Administration for Community Living. I urge Secretary Kennedy to meet and work with the Independent Living Network and other disability and aging programs currently administered by ACL to ensure they remain protected and fully equipped to serve their communities.”

3. Share this message on social media. Tag any relevant organizations.

Accessibility in Love: Romance and the Realities of Living with a Disability

Love is universal, but people with disabilities are often left out of conversations about love, intimacy and relationships. The truth is, people with disabilities experience love, intimacy, and romance just like anyone else—but the lack of visibility and inclusion around these topics perpetuates harmful stereotypes, while societal stigmas often add barriers to an already complex journey. Breaking these taboos is more than a matter of awareness; it’s about fostering a society that celebrates the full humanity of every individual, regardless of ability.

At WILC, we see firsthand how individuals with disabilities defy societal expectations every day—achieving independence, advocating for their needs, and building meaningful peer connections. We believe that addressing stigmas is an important step toward greater inclusion and self-empowerment.

Challenging Myths and Misconceptions

Unfortunately, many outdated assumptions still persist about the love lives of people with disabilities. Some of the most common misconceptions include:

People with disabilities are not interested in or capable of romantic relationships.
Dating someone with a disability is an act of charity rather than a partnership.
Individuals with disabilities are dependent, and relationships with them will always require caregiving.
People with disabilities do not have the same emotional, physical, or sexual desires as non-disabled individuals.

These stereotypes are not only false—they are harmful. They reinforce the idea that people with disabilities should not expect fulfilling, equal relationships. They also contribute to the social isolation many individuals with disabilities experience.

In reality, people with disabilities form relationships in the same ways as anyone else—through shared interests, emotional connection, and mutual respect. Like all relationships, those involving a person with a disability require communication, understanding, and compromise.

Self-Advocacy in Dating and Relationships – with Brendan Klein, Coordinator of Self Advocacy & Community Engagement at Westchester Institute for Human Development

For individuals with disabilities, self-advocacy plays an important role in navigating relationships. Being able to communicate personal needs, set boundaries, and advocate for accessibility is crucial in ensuring that relationships are built on equality and mutual respect.

This is where community programs like Hear Our Voices (HOV) at the Westchester Institute for Human Development (WIHD), become essential. WIHD’s self-advocacy initiatives like HOV help individuals develop confidence in social settings, learn how to build and maintain relationships, and challenge societal biases.

Brendan Klein, at WIHD, shares: At Hear Our Voices (HOV), we recognize that relationships are hard work for everyone. We want our self-advocates to build the skills they need to be successful. We host a Relationship Skills Group on Zoom on the second Tuesday of every month. In addition, we have also hosted speed dating events that offer a safe and fun environment to meet people. At HOV, we believe everyone can improve their skills to be able to have meaningful friendships and relationships.

Advice for Dating and Relationships

For people with disabilities, navigating the dating world can sometimes be challenging—especially when facing accessibility barriers or stigma. Here are a few key reminders:

Confidence is key. Your disability is part of who you are, but it does not define your worth in a relationship.
Communication is essential. Being open about your needs and boundaries ensures that both partners are respected and understood.
Seek inclusive spaces. Whether it’s through disability-friendly social groups, accessible events, or dating platforms that value inclusivity, surrounding yourself with understanding people makes all the difference.
Advocate for accessibility. If a dating spot, event, or activity is inaccessible, speak up! Your comfort and inclusion matter just as much as anyone else’s.

For non-disabled individuals in relationships with people with disabilities, the most important thing is to listen, learn, and approach the relationship with respect and openness. Disability does not make a relationship “different”—it simply means that, like all relationships, it requires mutual understanding and care.

In conclusion…

Love’s beauty lies in its diversity. People with disabilities are constantly breaking down barriers, creating new norms, and defying expectations in every aspect of life—including relationships. At WILC, we remain committed to supporting individuals with the resources, advocacy, and encouragement they need to thrive in every part of their lives, from their careers to their personal connections.

As we reflect on the stigmas and triumphs around love and disability, let us work toward a world where all forms of love are celebrated and where every individual can embrace meaningful relationships. If you’re looking for support, guidance, or resources related to independent living and self-advocacy, reach out to WILC. Fot more information on WIHD and their programs, visit the WIHD website Self-Advocacy Services – Westchester Institute for Human Development or reach out directly to csn@wihd.org.

Download Flyer of HOV Programs

Disability and Poverty: Breaking the Cycle Through Advocacy and Opportunity

January is Poverty Awareness Month, an important opportunity to spotlight the often-overlooked intersection of poverty and disability. For individuals with disabilities, the cycle of poverty is a dual challenge—both a cause and a consequence of systemic exclusion, limited resources, and barriers to education and employment. As a peer-driven, community-based organization that empowers people with disabilities to lead self-directed lives, WILC is committed to helping individuals address these barriers and build pathways toward independence and inclusion.

The Link Between Poverty and Disability

People with disabilities are disproportionately affected by poverty, with an estimated 26% of adults with disabilities living below the poverty line in the United States. Factors such as employment discrimination, lack of access to quality education, and inadequate accommodations are key contributors to this disparity. The high costs of living with a disability—medical care, assistive devices, and accessible transportation—can further deepen financial struggles.

Conversely, poverty itself can lead to disability. Limited healthcare access, unsafe living conditions, and stress-related illnesses often result in long-term health complications or disabilities. This cyclical relationship can make it very difficult for individuals to achieve stability and independence.

Empowering Individuals Through Employment

Employment remains one of the most effective ways to combat poverty for individuals with disabilities, yet barriers persist. According to the U.S. Bureau of Labor Statistics, people with disabilities face an unemployment rate more than twice that of the general population.

WILC addresses these challenges through programs like Access VR Peer Integration, which connects individuals with peers who’ve successfully entered the workforce. These peer connections offer not just practical advice but also encouragement and inspiration to navigate the workforce with confidence.

WILC Access VR Success Story:
Name: SD
Disability: Learning/Depression

“Salem came to PIP with multiple challenges. He has been a victim on so many levels. He was in foster care. He did get adopted as a young boy. The adopted father died and SD was crushed. At 19 his adopted mother asked him to leave her house and he had to go to a shelter. He had no support system and has always struggled with deep depression. SD’s journey is truly heart-wrenching in the face of numerous challenges. He carried feelings of being a victim.

He came to me to help him with getting his Peer Certificate. In the meantime, he got an internship at MHA for a Peer Advocate. He is very excited for the position and loves the work. It’s inspiring to hear that he is taking proactive steps towards his recovery and self-improvement by pursuing a Peer Certificate. Securing the internship is a significant milestone for him, especially since it aligns with his experiences and aspirations. This position not only provides him with valuable experience but also offers a chance to rebuild his sense of purpose and connection with others. It’s encouraging to see Salem on this path.”

SD said “I am so grateful for not only the support of this program but the belief in me that I can achieve my goals”

Preparing Youth for Employment Success

Transitioning from school to the workforce is particularly challenging for young people with disabilities, but WILC’s transition programs are designed to equip them with essential skills like resume writing, interview preparation, and understanding workplace accommodations.

Jessica Baumann, WILC’s Director of Educational Advocacy Services, emphasizes the value of early preparation:
“Improving post-school outcomes for transition-age students with disabilities is a main component of WILC’s education advocacy program. A comprehensive transition plan helps students achieve their goals—whether it’s securing a job, attending college, or developing independent living skills.”

Cynde Stratton, Independent Living Advocate at PILS, expands on how these programs address systemic inequities:
“Our transition program offers a holistic approach to employment preparation. Unfortunately, poverty limits ‘real world’ life exposure for individuals with disabilities. Our primary focus is on independent living skills—environmental awareness, communication, money management—which are monumental precursors to employment success.”

Breaking the Cycle Together

As we reflect on Poverty Awareness Month, let’s recognize the unique challenges faced by individuals with disabilities and commit to fostering a society that values inclusion and equity. The cyclical relationship between poverty & disability demands systemic solutions, and WILC continues to advocate for accessible education, affordable housing, and workplace accommodations, in order to empower individuals with disabilities to live independently and contribute meaningfully to their communities.

If you or someone you know could benefit from WILC’s resources and programs, don’t hesitate to reach out. Together, we can create opportunities that empower individuals and strengthen our community.

Contact WILC today to learn more about our programs and services.

Sensory Dysregulation and the Holidays

By: Fiona Rattray, PTIC Information Specialist for Putnam Independent Living Services

Have you ever been kept awake at night by a pesky bug bite that won’t stop itching, no matter what you do? You get up, you apply lotion, you walk around, you try everything you can to mitigate that nagging, infernal itch – we’ve all been there and can recognize how this tiny nuisance can drive us to distraction.

Or maybe you’ve gone to sit on an office chair only to find that the seat cushions are harder or much softer than anticipated, no big deal, right? And yet, odds are that this niggly little issue will throw you off your game, as you adjust both physically and mentally. Perhaps you miss a key moment in the conversation as you try to get more comfortable, or maybe you spend the next hour so distracted by how the seat feels that you miss the key points of an important work meeting.

These are familiar situations but, for some people, they are overwhelming. Take Jimmy, for instance, as a young child he would collapse to the ground if a loud truck went down the street. He was always on edge in school because of the unbearable flickering and buzzing of the overhead strip lighting and, on his fifth birthday, he curled into a fetal position and buried his head in his grandmother’s arms as the excited and chattering party guests began to arrive.

Now, try to imagine living a life in which you must navigate a constant deluge of intrusive and unwelcome sensations like these. Welcome to the world of sensory dysregulation!

Sensory dysregulation (also referred to as Sensory Processing Disorder or Sensory Integration Disorder) is more prevalent than you might think and has a significant and pervasive impact on sufferers. According to the National Center for Biotechnology Information, it is estimated that 5-16% of the general population has symptoms associated with sensory processing issues (1). The prevalence of sensory processing issues is much higher in individuals diagnosed with autism (as much as 90%)(2) and/or ADHD (up to 40%)(3). Yet, parents or educators of children with autism or ADHD, are often nonplussed when the topic is brought up:

“Does Johnny have any sensory issues?”

“No, I don’t think so”

“So, he’s fine with clothing, eating, loud noises etc.?”

“Well, now you mention it, he won’t wear jeans, I cut the labels out of his tops, he’s a really picky eater and he’s so scared of the sound of the toilet flushing he never goes to the bathroom at school.”

Johnny is 12 years old and is falling behind as he struggles to focus on schoolwork. Johnny may have an IEP, he may be receiving academic support and using accommodations but, if he has sensory issues and they aren’t being addressed, how does he even begin to engage with these supports?

Sensory dysregulation takes many forms. It can manifest as a heightened sensitivity to sights, sounds, smells, tastes or textures, resulting in an intolerance of restrictive or itchy clothing, a refusal to eat certain foods or an inability to tolerate the sound of a police siren. This is why you will see many autistic individuals using noise-cancelling headphones. At the opposite end of the scale, it may dull certain sensory receptors, this can be dangerous as it results in some individuals being less able to register pain. An individual can also have proprioceptive sensory issues, which impact one’s ability to sense their body in space. If you are wondering what this feels like, imagine sitting at a barstool and trying to rest your feet on that little bar underneath, but it’s not there, so your feet swing around not quite knowing what to do. Magnify that sensation, and you will start to get an idea of what it feels like.

You may be reading this and thinking that we all have sensory issues to some degree. After all, some of us don’t like the texture of mushrooms, we prefer soft fluffy towels, or we cannot abide the sound of nails on a blackboard. For an individual with Sensory Processing Disorder, however, there are more triggers, the impact is greater, and the response can be visceral and physical, so much so that it may appear disproportionate to the observer. In some cases, the sufferer even feels pain. Please do not mistake these responses for fussiness or melodrama, take your cue from the response you are seeing and take it seriously.

Which brings us to the holidays. When our emotions are heightened, so are our senses, and the last thing you want is to find yourself at a much-anticipated family event with your child in full meltdown. Here are some tips for getting through the holiday season:

Try to anticipate the triggers, for example: flashing lights, loud music, excited chatter, unusual smells, itchy holiday sweaters.

If possible, talk to your child about what to expect and agree how to communicate if feeling acute discomfort – it could be a quiet signal, such as a code word, or a light tap on the shoulder, signifying a need to move away from the sensory trigger.

Be on the lookout for signs of discomfort such as crying, avoidant behavior, increased stimming or agitation.

At home, if you have room, set up a quiet calming area with soft lighting and fabrics, some favorite books and toys and perhaps a weighted blanket.

If you are out visiting a relative or going to an event or parade, try to have a back-up plan – this can be as simple as retreating to the car and going for a short drive, wrapped up in a favorite blanket and soft toy with some calming music.

In short, with a little planning, both you and your child with sensory dysregulation can have a calmer and happier holiday season.

References

1)https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5733937/#:~:text=Current%20estimates%20indicate%20that%205,(ADHD)%20%5B4%5D.

2)https://www.frontiersin.org/articles/10.3389/neuro.07.029.2009/full#:~:text=Rates%20of%20sensory%20processing%20dysfunction,et%20al.%2C%202009%20).

3)https://sensoryhealth.org/node/1114#:~:text=Remember%2C%20studies%20suggest%20that%20up,have%20ADHD%20also%20have%20SPD.

Thankful Together: Notes of Gratitude from the WILC and PILS Team

As Thanksgiving approaches, we take a moment to reflect on the incredible dedication, compassion, and teamwork that make WILC and PILS so special. Our staff members shared their heartfelt thoughts on what they’re most thankful for, and their words beautifully capture the spirit of our mission and the community we serve. Here’s what they had to say.

I cannot let this opportunity pass without thanking the entire Staff at WILC and PILS. There are so many things to be thankful for working with such a talented crew!! Including:

Hard work, dedication, and commitment to the WILC/PILS mission, vision, and those we serve. But I genuinely applaud each of you for always supporting and being there for each other!! You all are shining stars.. THANK YOU for BEING YOU!!!.

Margaret M. Nunziato
Executive Director
Westchester Independent Living Center

In all the years I have worked at WILC and PILS the staff has been outstanding. We have a group of dedicated, compassionate and caring people who put their heart and soul into the work they do to help others. Many of us have personal experience with a disability, which builds an automatic understanding into the plight of our consumers. I couldn’t ask for a better place to work!!

Meg Valenzuela, MS Ed
Program Director of IL Services
Putnam Independent Living Services

Thankful for kindness, friendliness, and attitude of staff toward consumers with disabilities. It makes a big difference! Good holiday to all

Michael Hellman
ADA Specialist
Westchester Independent Living Center

I am thankful to have the privilege of being part of the PILS team for 16 years. The flexibility that PILS affords me has provided the opportunity to continue to work and contribute to our community. As a person with a disability, the significance of this opportunity cannot be overstated. I have always been supported and encouraged to be creative in resolving problems or improving the quality of the lives of my consumers. I am also thankful for the professional, respectful, encouraging, supportive kindness of WILC/PILS staff that supports me.

It gives me such pride and joy to help my consumers resolve problems with Social Services, Social Security, and Housing. No problem is too small or too big to resolve. I have been fortunate to build collaborative and productive relationships with the staff and administrations of these agencies who are always professional and eager to help with providing mutually beneficial resolutions.

I receive many sincere expressions of gratitude from my consumers whose lives have been improved and/or enriched through our work together. Being able to provide independent living skills instruction and witnessing the direct impact it brings to the quality of their lives always uplifts mine. And providing an example of living a productive, effective, and joy filled life with a disability is so rewarding.

Cynde Stratton, MSEd
Independent Living Advocate
Putnam Independent Living Services

I feel privileged for the opportunity to work for WILC, where I have the opportunity to contribute to the lives of individuals with disabilities on a daily basis helping them to lead their lives in the community through advocacy, and supports our program provides and oversees.

Since joining the NHTD/TBI Waiver team, I have been deeply moved by the dedication and compassion shown to every person we serve. I’ve witnessed firsthand the positive impact our services have on their lives, from fostering independence to building self-esteem. This has been incredibly rewarding and reinforces the importance of our mission.

I’d like to thank the wonderful mentors I have and all they have taught me to help me to grow and hone my skills. I am proud to be a part of the WILC team and look forward to continuing to make a positive impact in the lives of the elderly and disabled.

Barbara Q.

I am thankful to be able to have a hybrid work schedule, thankful to have such a nice office manager/IT guy (Stephen) who is always there when you need him with a smile and thankful for Peter and Michael in the front always so helpful.

Jofran Hunter
Intake Specialist RRDS/NHTD/TBI

I am truly thankful for supportive environment WILC/PILS provides. We are one team made up of many teams and I am not only thankful for this but also proud to be part of the greater mission we collectively are able to achieve with such wonderful people all working together to enrich and enhance the lives of the people we work with.

Aimee Parks
Program Manager for NY Connects, No Wrong Door

As a fervent believer in the value and importance of a free and appropriate public education, I am thankful for the opportunity to help families advocate for better supports for their children.

Fiona Rattray
PTIC Information Specialist
Putnam Independent Living Services

I am very happy for WILC. It is truly the only place that I have worked for that is like a family. It is the only place where people stay in their jobs because they love the work but also love the organization. Happy Thanksgiving

Denise DelliSanti

With Thanksgiving around the corner, I would like to put down in words how much I appreciate our waiver team and the providers who make all of this possible. When I first started with our company, at just 21, I was completely new to this world and a little intimidated. In a few weeks’ time I started to recognize what these programs are truly capable of and just how passionate my coworkers are. However, a crucial piece to our PILS/WILC puzzle is having such great leaders to look up to on a day-to-day basis.

Kara, the very first person I talked to at PILS, has never made me feel like I couldn’t do something. I’d like to thank her for not giving up on me when I doubted my work skills in the past, she really helped me find the confidence I needed to succeed in this field. Not only is she diligent and passionate with our work that we do, but she is genuinely such a good role model. I couldn’t ask for a better leader. I know others would agree.

Starting off at PILS, I only worked with NHTD, I did not have the pleasure of working with Lisa ( even though she always made me laugh). Over time Lisa has also given me the confidence to strive to be the best I can be and I always look up to how strong of a person she is. So, thank you Lisa for continuing to uplift our office with your contagious strength and passion, you are such a great mentor to have.

I’d like to express my gratitude and appreciation for Margaret. Margaret played a big part in training me for my current position and has really helped myself and my coworker’s step outside of our comfort zones. Her guidance has not only helped me succeed professionally but also inspires me to push my boundaries and strive for excellence daily. I couldn’t thank her enough for this. “Great Leaders Inspire Greatness in Others.”

I am so thankful for our amazing team at PILS & WILC. I see that we as a whole can really improve the quality of life of not only participants, but even their family members who have tried countless times to secure a safe environment for their loved one. We really have a wonderful group of people who continuously work together and advocate for participants’ lives every single day without failure. I am very grateful to be a part of this powerful group and for everyone being so pleasurable to work with. Thank you always.

Samantha Smith

This holiday season, we invite you to express your gratitude by giving back. Your gift helps us continue empowering individuals with disabilities and making a lasting impact in our community. Visit our donation page today to make a difference.

Make a Donation to WILC

See photos from WILC & PILS team holiday gatherings and follow us on Instagram for more news!

Accessible Voting in Westchester: Your Rights and Resources FAQ with WILC’s ADA Specialist Michael Hellman

With Election Day approaching, it’s crucial that all voters, including those with disabilities, are empowered to exercise their right to vote independently and privately. Michael Hellman, WILC’s ADA Specialist, has shared essential information to ensure a smooth voting experience for voters with disabilities. Below is a guide covering your rights, available accommodations, and key contacts to help make Election Day accessible and inclusive.

What Are My Rights as a Voter with a Disability?

All voters are entitled to a private and independent voting experience. Voters with disabilities have specific protections to ensure accessible voting options that support autonomy and dignity at the polls.

What Accommodations Are Available for Voters with Disabilities?

Every polling place is required to be accessible and equipped with a Ballot Marking Device (BMD), often called the “B machine.” This device provides multiple accommodations, including enlarged print, audible signals, and sip-and-puff attachments for voters with limited manual dexterity. This device is sometimes overlooked, so if you need it, ask a poll worker for assistance and a demonstration. If any issues arise, we encourage you to report them to the Board of Elections or reach out to WILC’s ADA Specialist.

Can I Bring Someone to Help Me Vote?

Yes, voters with disabilities can bring someone they trust to assist with the voting process, ensuring they receive any needed help at the polls.

Are There Alternative Ways to Vote if I Can’t Access the Polls?

If attending a polling place in person isn’t feasible, voters can request an absentee ballot, allowing them to vote without needing to visit the polls.

What Should I Do If I Encounter Accessibility Issues on Election Day, or Want to Make Sure My Polling Place Is Accessible Before I Arrive?

You can directly contact the Voting Commissioners:

Tajian M. Nelson, Democratic Commissioner – (914) 995-5706
Douglas A. Colety, Republican Commissioner – (914) 995-5703

They are available to address concerns promptly and help maintain an accessible voting environment for all.

Can I Vote Independently and Privately with a Disability?

Yes! The BMD voting machine is designed to allow voters with disabilities to cast their votes privately and independently, accommodating a wide range of accessibility needs.

What Resources Are Available for Voters with Disabilities?

For more information and guidance on voting, check out the following resources:

Westchester County Board of Elections: citizenparticipation.westchestergov.com
- Provides details on voting processes, including educational resources about using voting machines.
League of Women Voters of Westchester: Access nonpartisan candidate guides and election information through local and national chapters.
- Learn more about candidates and ballot issues: www.ontheissues.org
- View your local ballot and candidate details: Ballotpedia

How Can WILC Assist with Your Voting Needs?

For last-minute questions or assistance on Election Day, reach out to Michael Hellman at WILC: 914-682-3926 ext. 2119. You can also contact the Westchester County Board of Elections directly for urgent inquiries.

By sharing these resources and guidelines, WILC hopes to empower all voters with disabilities in Westchester County to cast their ballots independently, confidently, and securely.

Creating Inclusive Workplaces: Disability Employment Awareness Month

October is National Disability Employment Awareness Month (NDEAM), a time to highlight the invaluable contributions that workers with disabilities bring to businesses, while also raising awareness of the barriers they often face in the workplace. As companies today continue to focus on Diversity, Equity, and Inclusion (DEI), it’s crucial to ensure that these efforts fully embrace individuals with disabilities. At Westchester Independent Living Center (WILC), we are committed to fostering environments where people with disabilities can thrive. In the workplace, this means inclusive hiring practices, workplace accessibility, and compliance with disability employment laws

Why Inclusive Workplaces Matter

In today’s landscape, diversity is known to be a key driver of innovation and employee satisfaction. However, while strides have been made to address racial, gender, and cultural diversity, disability inclusion can often lag behind. According to the U.S. Bureau of Labor Statistics, the employment rate for individuals with disabilities remains significantly lower than for those without disabilities. This disparity is fueled by several factors, including physical and digital accessibility barriers, biases, and misunderstandings around how to provide appropriate accommodations.

For businesses, excluding individuals with disabilities from their DEI efforts limits the potential to harness the creativity, problem-solving skills, and unique perspectives that disabled workers bring to the table. Companies that prioritize inclusivity attract a broader talent pool and are more likely to retain skilled employees. Research has shown that organizations with diverse teams are better equipped to innovate, and their employees report higher job satisfaction.

Additionally, inclusive workplaces foster stronger relationships with customers, partners, and the community at large, enhancing a company’s reputation and social impact. When businesses invest in creating accessible environments, they’re investing in a future where every employee, regardless of ability, can contribute to their fullest potential.

Your Rights Under the ADA

At the core of workplace accessibility is the Americans with Disabilities Act (ADA),

Click here to hear
ADA Specialist
Michael Hellmann

designed to protect individuals with disabilities from discrimination. The ADA consists of five titles, with Title I focusing specifically on employment. Michael Hellman, WILC’s ADA Specialist and Community Advocate, explains that it is essential for both employees and employers to understand their rights and responsibilities under this law. These rights and responsibilities include:

Disclosure
For employees with disabilities, one of the most challenging decisions can be whether or not to disclose their disability to their employer. While disclosure is not required, sharing this information is often necessary to request accommodations. Disclosure should be handled with care, ideally when an employee feels confident that their workplace will respond positively and provide the support they need.

Accommodations
The ADA requires employers to provide “reasonable accommodations” to employees with disabilities. These can range from adjusting work schedules, providing assistive technologies, or modifying the physical workspace to ensure it is accessible. Employees should feel empowered to communicate what they need to succeed, while employers are legally obligated to consider and implement these accommodations unless they would cause undue hardship.

Workplace Accessibility
Beyond individual accommodations, businesses must ensure their workplaces are designed with accessibility in mind. This includes everything from providing ramps and accessible bathrooms to ensuring digital tools, such as online work platforms, are usable for employees with visual, auditory, or motor impairments. Employers have a responsibility to identify and remove barriers that might prevent employees with disabilities from accessing workspaces, tools, and opportunities.

The ADA is designed to prevent discrimination and ensure that employees with disabilities are treated fairly. This means employers cannot refuse to hire or promote someone based on their disability, and employees have the right to request reasonable accommodations without fear of retaliation. By knowing and exercising these rights, individuals with disabilities can ensure they receive the support they need to succeed in the workplace. Read more here on WILC’s website.

Save the Date: WILC’s Resource & Transition Fair

WILC supports individuals with disabilities in their employment journey. Save the date for our upcoming Resource & Transition Fair on November 19, 2024 from 4–7 p.m. at Brewster High School. This event will offer a wealth of resources related to education, training, employment, and advocacy. Attendees will have the opportunity to speak with representatives from a variety of agencies and participate in breakout sessions on key topics.

For businesses, this is a valuable opportunity to learn more about fostering workplace inclusivity and connecting with vocational rehabilitation resources that support hiring and retaining individuals with disabilities.

WILC’s Guide to Supporting the Paris 2024 Paralympics

This month, the 2024 Paris Paralympics will commence, presenting an opportunity for the world’s top disabled athletes to compete alongside their peers and showcase their skills on an international platform. From August 28th to September 8th, the games will feature events throughout the historic city of Paris, including iconic locations such as Place de la Concorde and the Champs-Élysées.

Since 1960, the games have served as a platform for Paralympic athletes and the values they embody, as well as a reminder that people with disabilities have the right to participate in sports and recreational activities at all levels.

The Paralympics not only celebrate the extraordinary achievements of disabled athletes but also drive important conversations about inclusion and accessibility in sports. Engagement through watching, supporting, and advocating for these athletes is crucial in advancing a more inclusive society, elevating the dialogue around disability, and demonstrating a commitment to equal opportunities for all.

How to Watch:

For viewers at home, this year’s games will be covered by NBC and streamed through Peacock. Additional live streams will be available through the Paralympics website.

Looking to engage even more with the Paralympics? Follow along on social media top athletes such as Spanish swimmer Daniel Dias, British racer Hannah Cockcroft, and American swimmer Anastasia Pagonis on Instagram for behind-the-scenes content. Explore the hashtag “#Paralympics” for additional inspiring updates and stories from across the world.

Many teams have dedicated websites with information about their athletes and opportunities for donations. Contributions support essential areas such as training, health and wellness resources, and innovative equipment, crucial for ensuring success in the games.

Highlights of the Paris 2024 Paralympics:

Opening ceremonies will feature a pair of French Athletes, sprinter Nantenin Keïta and triathlete Alexis Hanquinquant leading a parade through Paris while carrying their nation’s flag.

Thomas Jolly, the artistic director of the games, captures the excitement of the upcoming event by stating, “From the Champs-Élysées to Place de la Concorde, I look forward to creating a spectacle that will transform the heart of Paris with performances unlike anything ever seen before.”

As part of the continued growth and awareness surrounding the Paralympics this year, eight athletes and one guide runner will represent the largest-ever Refugee Paralympic Team. This team will compete in various events, including powerlifting, table tennis, taekwondo, triathlon, and fencing.

Key Dates:

Opening Ceremony: August 28, 2024
Swimming: August 31 – September 6, 2024
Cycling (Track): August 30 – September 4, 2024
Volleyball: August 29 – September 8, 2024
Powerlifting: September 1 – September 6, 2024
Wheelchair Basketball Finals: September 9, 2024
Closing Ceremony: September 8, 2024

Standout Events to Watch For:

Wheelchair Rugby: Sarah Adam will be the first woman to represent Team USA in wheelchair rugby at Paris 2024, aiming to inspire others through her role as a key ball carrier.
Powerlifting: Mexico’s Amalia Pérez, competing in her seventh Paralympics, and Egypt’s Sherif Osman, with a world record lift of 211 kg, will both be making
Goalball: Played in complete silence to aid visually impaired athletes, goalball will see teams compete for gold medals from August 29 to September 5.
Cycling: The Saint-Quentin-en-Yvelines Velodrome will host 17 gold medal events from August 29 to September 1, focusing on team sprints and individual

Westchester Independent Living Center is dedicated to supporting the disability community. During the Paris 2024 Paralympics, we celebrate the achievements of these athletes as they inspire our continued advocacy for greater inclusion and accessibility. Join us in supporting these athletes and embracing the spirit of the Paralympics.

If you are seeking guidance for accessing the resources and opportunities you need in order to live independently, please reach out today to WILC at (914) 682-3926 or PILS at (845) 228-7457.

Westchester Independent Living Center 2024 Art Showcase

The WILC 2024 Disability Pride Month Art Showcase celebrates the creativity and resilience of our community members with disabilities. This vibrant exhibition features an inspiring collection of visual and written artworks submitted by individuals within the WILC community.

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Creative Writing Submissions:

Nightlit Festival

Samhain Story

Limbic

Visual Art:

4 Things WILC is Celebrating about Disability Pride 2024, with Sylvia Cusack

According to the Westchester County Department of Health, approximately 20% (nearly 200,000) people in Westchester County live with a disability. As we celebrate Disability Pride Month at Westchester Independent Living Center, we recognize the significance of this month and its impact on fostering a more inclusive society. Disability Pride Month is a time to honor the history, achievements, and resilience of the disability community. This month-long celebration marks the anniversary of the Americans with Disabilities Act (ADA), landmark legislation enacted on July 26, 1990, which broke down countless barriers to inclusion and accessibility in society. Disability Pride Month not only commemorates these milestones but also highlights the ongoing efforts and triumphs of individuals with disabilities.

Sylvia Cusack, Post-Rehabilitation Transition Specialist at WILC

To shed light on this important topic, we had the pleasure of speaking with Sylvia Cusack, a passionate advocate for disability rights and a cherished member of the WILC community. Sylvia is a Post-Rehabilitation Transition Specialist at WILC who has dedicated her career to advocating for and empowering individuals with disabilities, helping them navigate the challenges of post-rehabilitation and transition to independent living. From our conversation with Sylvia, we are highlighting 4 things WILC is celebrating this Disability Pride Month 2024.

1. The Historical Significance of Disability Pride Month

Disability Pride Month is rooted in decades of advocacy, honoring those who fought for disability rights and recognition. Sylvia Cusack remarks, “Over decades and decades of activism, so many glorious people really paved the way for us. I think about the many movements that started in a series of institutions in different parts of the [United] States—the people who wanted to go home, and then the organizing on the streets” to secure rights by way of public policy.” Sylvia reflects, “the work that I do is possible because of the ADA.” “Before this was made possible, people in situations like mine who are disabled and want to get to certain places, did not have transportation access, access to public places. A number of universities and other places like doctors offices, a bank, were not as accessible as things are becoming now.” She specifically emphasizes the importance of Section 504 of the Rehabilitation Act and Title II of the Americans with Disabilities Act of 1990, which protect parents and prospective parents with disabilities from unlawful discrimination in the administration of child welfare programs, activities, and services.

2. Disability Pride’s Emphasis on Community:

Disability Pride Month is a time for the disability community to come together in a spirit of empowerment. “It represents a time of year where a community of people…and what I hear is actually the world’s largest minority group…who very often get left out of many conversations, are invited to center themselves so they don’t really have to feel hidden in the way that they have been historically,” shares Sylvia.

This sense of community is vital. It provides a platform for individuals with disabilities to share their experiences, challenges, and triumphs. By doing this, they can find strength in numbers, build networks of support, and foster a sense of belonging.

Moreover, Disability Pride Month serves as a reminder that the disability community is diverse, comprising people with a wide range of abilities, backgrounds, and stories. Celebrating this diversity not only strengthens the bonds within the community but also educates the broader public about the multifaceted nature of disability.

THE WILC 2024 DISABILITY PRIDE MONTH ART SHOWCASE

The WILC 2024 Disability Pride Month Art Showcase celebrates the creativity and resilience of our community members with disabilities. This vibrant exhibition features an inspiring collection of visual and written artworks submitted by individuals within the WILC community.

We invite you to explore the showcase here!

Celebrate Disability Pride Month with us by appreciating this artwork, which will also be featured on WILC’s newsletter (sign up for our e-mails), and on social media ( Facebook, Instagram and LinkedIn)

3. A Month to Educate & Learn:

Disability Pride provides an opportunity for education on disability rights and conversations about disability. During a dedicated month of awareness, Sylvia expresses, “we can kind of come together and learn from different members of the community, in the many communities that make up the disability community, and really hear from the people themselves.” Doing so, she says, highlights the need to address misconceptions surrounding the disability community and individuals therein. For example, Sylvia comments on the misconception that a person with disabilities occupies a lesser level of personal sovereignty. She emphasizes, “The person [with a disability] will always be the authority on their own experience and should be acknowledged directly in a conversation they are included in or subject to.” Respecting privacy and autonomy is how we ultimately address the misconception that people with disabilities are burdensome or do not possess the same dignity as others without disabilities.

4. Disability Pride Empowers Ongoing Advocacy:

Despite significant progress, there is still work to be done, and Disability Pride Month serves as a reminder to continue advocating for accessibility, rights, and inclusion. “Disability Pride represents a degree of progress that I am very grateful to see in real-time, and it gives me that much more hope for the younger generation of disabled people who hopefully won’t have to go through the things that some of our elders did,” Sylvia states. Ongoing progress on a collective scale starts with empowerment on the individual level. To younger people with disabilities, Sylvia advises that “the people who have been some degree of disrespectful or ableist, or mistreating someone based on your disability, are lying to you…They’re not correct. You are a full and complete human being, and the world around you and the world you are looking forward to–the many futures you are all imagining for yourself–are not at all impossible.”

As we reflect on the significance of Disability Pride Month, let us continue to advocate for and support the rights and achievements of individuals with disabilities. Together, we can build a more inclusive and equitable society for all.

Healthcare Quality and Disability: A Conversation with WILC Experts

AUDIO TRANSCRIPTION:

Stay tuned for Part 2!

From Denise Green, Parent Training and Information Center Coordinator

What does “independence” look like for a student with a disability—(and how can that differ from student to student?)

What are some early indicators that a student may need extra support, or is ready to take more ownership over their day-to-day school routine?

From Robin Llaque, Educational Advocate & parent

How can parents help their child become more confident in communicating with teachers or school staff when they need help?

What’s one piece of advice you give every parent preparing a student with a disability for a more independent school year?

From Fiona Rattray, Parent Training & Information Center Specialist & Parent

What role does assistive technology play in promoting school independence, and what tools should parents be aware of?

As we head into a new school year, what should parents keep in mind when updating IEPs or 504 plans?

Contact Gichel Walters, Director Minority Outreach and Re-Entry Programs, gwalters@wilc.org or call 914-682-3926 (voice), 914-259-8036 (VP).

Be a part of our community! Sign up for our monthly newsletter, and follow us on Facebook, Instagram and LinkedIn)

WILC Intake Form - NEW 2025

The Power of Expression: Why Art Matters

Inspiration from the Masters: Famous Artists with Disabilities

Join the 2025 WILC Art Showcase

More this Disability Pride Month: WILC Virtual Poetry Slam

What are the less obvious—but equally important—barriers to accessibility?

What does true accessibility look like?

How is WILC working to change things?

What gives you hope?

What’s your message to policymakers and businesses?

Join the Movement

Upcoming Webinars & Events with WILC/PILS

Challenging Myths and Misconceptions

Self-Advocacy in Dating and Relationships – with Brendan Klein, Coordinator of Self Advocacy & Community Engagement at Westchester Institute for Human Development

Advice for Dating and Relationships

The Link Between Poverty and Disability

Empowering Individuals Through Employment

WILC Access VR Success Story: Name: SD Disability: Learning/Depression

Preparing Youth for Employment Success

Breaking the Cycle Together

References

1)https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5733937/#:~:text=Current%20estimates%20indicate%20that%205,(ADHD)%20%5B4%5D.

2)https://www.frontiersin.org/articles/10.3389/neuro.07.029.2009/full#:~:text=Rates%20of%20sensory%20processing%20dysfunction,et%20al.%2C%202009%20).

3)https://sensoryhealth.org/node/1114#:~:text=Remember%2C%20studies%20suggest%20that%20up,have%20ADHD%20also%20have%20SPD.

This holiday season, we invite you to express your gratitude by giving back. Your gift helps us continue empowering individuals with disabilities and making a lasting impact in our community. Visit our donation page today to make a difference.

How to Watch:

Highlights of the Paris 2024 Paralympics:

The WILC 2024 Disability Pride Month Art Showcase celebrates the creativity and resilience of our community members with disabilities. This vibrant exhibition features an inspiring collection of visual and written artworks submitted by individuals within the WILC community.

Be a part of our community! Sign up for our monthly newsletter, and follow us on Facebook, Instagram and LinkedIn)

Creative Writing Submissions:

Visual Art:

1. The Historical Significance of Disability Pride Month

2. Disability Pride’s Emphasis on Community:

THE WILC 2024 DISABILITY PRIDE MONTH ART SHOWCASE

The WILC 2024 Disability Pride Month Art Showcase celebrates the creativity and resilience of our community members with disabilities. This vibrant exhibition features an inspiring collection of visual and written artworks submitted by individuals within the WILC community.

Celebrate Disability Pride Month with us by appreciating this artwork, which will also be featured on WILC’s newsletter (sign up for our e-mails), and on social media ( Facebook, Instagram and LinkedIn)

3. A Month to Educate & Learn:

4. Disability Pride Empowers Ongoing Advocacy:

Footer

Main Office

Satellite Office

Yonkers Outreach Office

WILC Access VR Success Story:
Name: SD
Disability: Learning/Depression